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FAIR NEWSLETTER
FAIR Reaches Vice President Cheney
As reported in
FAIR's
October
Newsletter, we exposed the
favoritism towards AIDS exhibited by Journalist Gwen Ifill
when she moderated the Vice Presidential debate. We relayed
our
objections to
Ms. Ifill, President Bush, Vice President Cheney and to
hundreds of journalists nationally. The Vice President has
been informed of our efforts as evidenced by
a letter
we received from the Special Assistant to the Vice
President. (Note: Our government is spending $40 for research
on VP Cheney for his illness, cardiovascular disease, compared
to $3,084 on each AIDS patient.)
Unfair Governmental Research Policies
not Limited to Bias towards AIDS
The FAIR Foundation's
Home Page now alerts all visitors to
our site of a stunning
fact: the governmental research
allocation for the “Health Effects of Climate Change” is
greater than the money spent for
EACH of the
following: brain cancer, cystic fibrosis, cerebral
palsy, cervical cancer, child leukemia, Chronic Fatigue
Syndrome, Crohn’s Disease, Down Syndrome, emphysema, epilepsy,
Fibromyalgia, Hodgkin’s Disease, the flu
(influenza), multiple sclerosis, muscular dystrophy, SIDS,
spinal cord injury, stem cell research, uterine cancer and
many others.
A FAIR Request to
Hollywood Star Kathleen Turner
On her
national radio program "American Dialogue," Hollywood star Kathleen Turner recently featured
Dr. Judith Auerbach, Vice President, Public Policy, for the
American Foundation for AIDS Research (amfAR). We have
requested equal time to present opposing views and we present
interesting financial statistics on amfAR. Read it
here.
"Overspending
on AIDS is Killing Us"
Attorney, author and journalist, Michael Fumento has been a
contributor to our newsletters before with his insightful
comments. Once again he shows no hesitation in discussing AIDS
favoritism in research funding in this
excellent article.
Opinion Editorials Continue
FAIR's National
Exposure
FAIR
Foundation members continue to submit opinion
editorials to their local newspapers in support of change
in our government's research policies and this month we
profile FAIR member, Phyllis Wit and thank her for her
advocacy. At 80 years of age, Phyllis is clear evidence
that advocacy for fair and equitable research distribu- tions
transcends all ages. Read her powerful 11/17/04 Op-ed
here.
A John's Hopkins Researcher, AIDS & FAIR
Approximately
13 million Americans have Chronic Obstructive Pulmonary
Disease (COPD = chronic bronchitis, emphysema, asthma).
887,000 are estimated by the Centers for Disease Control
as having AIDS. COPD kills more than 7 times the number
of Americans as AIDS yet
$3,084
is spent on each AIDS patient versus only $5 (yes, five
dollars) on each COPD patient. Is it possible a person who
does research in acute lung injury would support present governmental policies that allow this imbalance?
Amazingly, yes. Read it
here as well as our response.
Focus Disease: Hepatitis
B (HBV)
-
Hepatitis B
is the
most common serious liver infection in the world.
It is caused by the hepatitis B virus that attacks the
liver. The virus is transmitted through blood to blood contact and
infected bodily fluids (e.g. by contaminated needles, saliva,
semen or by sharing pierced earrings, razors or toothbrushes). It also can be
transmitted from an infected woman to her newborn during the
delivery process.
-
Hepatitis B is global:
2 billion people have been infected (1
out of 3) with HBV and 400 million are chronically infected. In
addition, 10-30
million people are infected each year.
-
Hepatitis B is deadly:
An estimated 1 million people die each
year from hepatitis B and its complications.
-
Hepatitis B in the USA: There are
1.25 million Americans with
hepatitis B and approximately 240,000 new cases of
hepatitis B infection occur here annually.
-
Hepatitis B causes great suffering:
People with HBV have a variety of symptoms including: fatigue and
exhaustion; fever, muscle or
joint pain, loss of appetite, mild nausea and vomiting.
Advanced disease symptoms include severe
nausea and vomiting, yellow eyes and skin ("jaundice"), bloated or
swollen stomach (ascites), vomiting blood and mental confusion
(encephalopathy).
-
Hepatitis B prevention & treatment:
HBV
can be prevented with a safe and effective vaccine. For
the 400 million people worldwide who are already chronically
infected with hepatitis B, the vaccine is of no use and drugs such
as lamivudine, Interferon-alpha and Adefovir-dipivoxil are
available. Liver transplant is an effective treatment when
liver failure occurs.
-
Hepatitis B
Support is available:
Online support is available from the "Hepatitis B Information and
Support List" founded by HBV Advocate Steve Bingham. Adoptive and
biological parents of children living with chronic hepatitis B or
C, and HIV are invited to participate at
PKIDs
Email Support List. Adoptive or biological parents of children
living with hepatitis B are invited to participate at
HBV Adoption Support List. You may find a support group in
your city from "Hepatitis
Magazine."
-
Fairness? The NIH is spending
40 million
on Hepatitis B ($32 per patient) in research versus almost
3 Billion on HIV/AIDS ($3,084 per
patient). That's not fair.
-
Hepatitis B & The FAIR Foundation:
Hepatitis B and all other diseases except HIV/AIDS would
receive larger research allocations under the FAIR Foundation's
recommended policies.
Please help us
to change Congress and the National Institutes of Health
(NIH).
JOIN free
and confidentially today. We also hope you will post this
Newsletter in chat rooms, internet support groups, and forward it to your associates, friends and relatives with your
recommendation that they join you as a member.
With strength in numbers, we WILL achieve fair and equitable NIH
distributions for Hepatitis B as well as ALL
other diseases.
Facts on Hepatitis B from the
Hepatitis B
Foundation,700 East Butler
Avenue, Doylestown, PA Email:
info@hepb.org
The FAIR Foundation
78629 Bougainvillea Drive,
Palm Desert, CA 92211
E-mail:
FAIR@dc.rr.com
Mission Statement:
The FAIR Foundation is
dedicated to fair and equitable distribution of
research funds by the NIH for all diseases, including the 16
that kill a million more Americans than AIDS. A disease’s mortality rate
shall be given emphasis in determining allocations and other
secondary factors shall be utilized to insure diseases
that cause great suffering but have low mortality rates will
also receive significantly increased funding.
FAIR is an acronym for Fair Allocations In
Research. FAIR is fair.
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