Points of Interest on NIH Research Allocations per 2005 budget, updated 3/19/05

AIDS deaths from CDC estimated at 18,071 in 2003

Cardiovascular Disease kills 930,000 every year, yet receives over 1/2 Billion less than AIDS

The NIH is spending $3,084 on each citizen estimated as having HIV/AIDS

Diabetes kills more Americans than AIDS and breast cancer combined, yet the NIH spends only $80 on each  diabetic

Alzheimer's Disease kills 3.3 times more than AIDS, yet the NIH spends only $155 on each patient with Alzheimer's Disease

Prostate cancer kills 2 times more than AIDS, yet the NIH spends only $150 on each patient with prostate disease

Hepatitis C (HCV) kills 12,000, yet the NIH spends only $25 on each HCV patient

Hepatitis B (HBV) kills 5,000, yet the NIH spends only $32 on each HBV patient

The flu (influenza) on average, now kills almost 2+ times more than AIDS.  Flu: $60 million
AIDS: $2.3 Billion

Parkinson's Disease death rate similar to AIDS yet the NIH spends $162 on each patient

COPD (Chronic Obstructive Pulmonary Dis.) = 119,999 deaths in 2000 yet the NIH spends only $5 on each patient

West Nile Virus cases in 2004: 2470 cases and 88 deaths. West Nile Virus research allocation is $17,408 per patient.

Total USA HIV/AIDS budget for 2005 totals just under 20 Billion. 11 Billion for care, cash & housing assistance for patients. Total AIDS Funding since day one: 170 Billion dollars through 2005 (From Henry J Kaiser Foundation)

The infection rate for AIDS throughout the entire world is 1 percent or less except in two countries, Sub-Saharan Africa and the Caribbean

SARS: "Current Situation" from the CDC states "there is no known SARS transmission anywhere in the world." Research monies  not disclosed by NIH. Press coverage:  disproportionate.

Monkeypox
cases confirmed in the USA: 37, deaths =0.

Statistical supporting links may be viewed here

Updated on Funding for your Disease of Interest is here.

Please take a moment to view our eminent  Board of Directors

FAIR is an acronym for Fair Allocations In Research. FAIR is fair.

Volume 3: Issue 3
 

 FAIR NEWSLETTER: March 2005
 


Centers for Disease Control (CDC) Releases
2003 Estimated AIDS Death Statistics

The Centers for Disease Control released the latest (2003) death statistics for AIDS and the new estimate is an increase of 460 over the revised 2002 total. With AIDS deaths in states plummeting (see California's 98% drop in newly infected AIDS patients (2004) to 201 deaths here), we remain skeptical of these "estimates." The report includes latest AIDS death statistics by race, gender, age and transmission category 1999-2003. Compare

The Director of the CDC:
Avian Flu Single Biggest Threat to the World

"This is a very ominous situation for the globe," Dr. Julie Gerberding told a meeting of the American Association for the Advancement of Science, calling the avian flu the "most important threat that we are facing right now." Deaths from Avian flu--ever: 45. Reuters story

Washington, DC HIV/AIDS Administration
under Investigation

The D.C. Office of the Inspector General faulted the city's HIV/AIDS Administration for poor management of federal funds, including poor accounting. Lydia Watts, senior deputy director of the HIV/AIDS Administration, was criticized for spending $450,000 on a luncheon and promotional videos.

NIH Scientists Threaten Litigation to Reverse New Conflict-of-Interest Policy

Following FAIR's previous communications with Congress and the Director of the NIH, Dr. Zerhouni, regarding the need to eliminate conflict of interest issues that arguably are biasing NIH funding decisions, new rules were issued eliminating all such lateral payments between scientists and drug companies. Senior scientists are now planning litigation in order to retain their ability to take payments from drug companies. Read of the fury directed at Dr. Zerhouni in this article from the Washington Post when Dr. Zerhouni announced the new restrictions to them and the full story on planned lawsuits by physicians and scientists here.

FAIR's Rebuttal in Forbes Magazine

In the Forbes February 2005 issue, Thomas P. Stossel, M.D. laments the new conflict of interest rules that restrict scientists’ interactions with pharmaceutical companies. Dr. Stossel and those employees may not feel these new rules are needed, but we respectfully disagree. FAIR's rebuttal was submitted to Forbes Magazine by our Founder, Richard Darling, DDS, and by FAIR Board member, Leonard J. Morse, M.D. It addresses the need to make these rules permanent and the connection to disparity in funding for AIDS versus all other diseases.

Japan Alarmed as HIV Infections Hit New High


What has caused the Japanese to be alarmed and to broadcast worldwide news of their new high in HIV infections. Is it 40,000 new cases as estimated for the USA, 20,000, 10,000? Read how many new infections for this country of 130 million people here. AFP:Agence France-Presse, 2005

FAIR Members' Soapbox Alert regarding
Prostate Disease and Alzheimer's Disease

FAIR's members are continuing to utilizing a very inexpensive service to contact President Bush and VP Cheney for fair allocations in research, and at the same time they are alerting thousands on the need for change. See a recent "Soapbox Alert" to citizens with prostate disease and families of Alzheimer's Disease patients here and send an alert President Bush today!

NIH AIDS Director States "AIDS is Not
the Only Show in Town"

In a presentation on the slow rate of funding for disease research, the Director in charge of AIDS funding, Anthony Fauci, MD, acknowledged the large (10%) funding for HIV/AIDS and stated "In terms of infectious disease threats, AIDS is not the only show in town." He stated that there are many other problems that are vying for public attention, such as the possibility of pandemic flu and SARS, but he did not mention hepatitis B or hepatitis C. Latest CDC SARS update: there is no known transmission of SARS in the world. The flu kills twice as many as AIDS annually.

758 Scientists Protest NIH Research Policy

The scientists, including two Nobel Prize winners said, "The diversion of research funds from projects of high public-health importance to projects of high Biodefense but low public-health importance represents a misdirection of NIH priorities and a crisis for NIH supported microbiologist research." Full story here.

FAIR Adds Amber Alerts

Although not a governmental research issue, The FAIR Foundation is pleased to join the national campaign to save the lives of abducted children by alerting the public when a child is kidnapped. We have added time-sensitive Amber Alert messages to our website here.

Focus Disease of the Month: Autism

  • What is autism?: Autism is a developmental disability (brain disorder) that generally appears between the ages of 15 and 20 months of age. Most patients then begin to lose speech, social skills and physical abilities and completely withdraw into a world of their own. Autistic children cannot perceive fear or dangerous situations, nor can they filter and ignore stimuli. They typically have a host of biomedical and neurological problems including chronic diarrhea because their intestines are so damaged that they cannot absorb vital nutrients, minerals, and vitamins. Liver and kidney functions are impaired, and immune systems are compromised and they cannot fight off simple infections.

  • Autism is common: There are 1.77 million cases of autism in the U.S., making it more prevalent than AIDS as well as the following children's diseases combined: Down Syndrome, childhood diabetes, and childhood cancer. 24,000 new cases are diagnosed annually; one every 20 minutes.

  • Autism is costly: The economic impact of autism is more than $90 billion and expected to more than double in the next decade.

  • Autism and treatment: There is no medical detection,
    treatment or cure for autism.

  • Diagnosing Autism: There is no specific test that can diagnose autism. Several specialized screening methods have been developed that are now used in diagnosing autism. To see a description of several of these methods click here.

  • Autism and gender: Boys are 4 times more likely than girls to have autism

  • Fairness? The NIH is spending only $66 on each patient with Autism in research versus $3,084 on each AIDS patient.

  • Autism and all other diseases except HIV/AIDS would receive significantly larger research allocations under The FAIR Foundation's recommended policies

You have helped us grow rapidly, but we need more members to change Congress and the NIH. Please encourage new membership by posting this in chat rooms, Blogs, internet support groups, and by forwarding it to your associates, friends and relatives with your recommendation that they join free HERE. With strength in numbers, we WILL achieve fair and equitable NIH distributions for Autism as well as ALL other diseases

Autism statistics and information from Autism Speaks, the Autism Society of America (their autism brochure is available here) and the Travis LaBoy Foundation.

The FAIR Foundation

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E-mail: FAIR@dc.rr.com

FAIR Mission Statement: The FAIR Foundation is dedicated to fair and equitable distribution of research funds by the government for all diseases, including the 16 that kill a million more Americans than AIDS. A disease’s mortality rate shall be given emphasis in determining allocations and other secondary factors shall be utilized to insure diseases that cause great suffering but have low mortality rates will also receive significantly increased funding.


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