|
Are
you aware that the death rate from AIDS in California’s and
Illinois’s patients has plummeted
97 percent (b) and
93 percent (c) yet AIDS still receives
10% (d) of the entire federal research budget? The bias
towards AIDS has resulted in gross differences in funding for
major killers and rare diseases. For example, our government is
spending $3,040 on each AIDS patient in research versus the
following amounts: $5 - COPD, $25 - hepatitis C, $32 - hepatitis
B, $37 cardiovascular disease, $50 - diabetes, $133 - prostate
cancer, $143 - Alzheimer’s, and $148 - Parkinson’s disease.
(e)
When one is made aware that there are sixteen diseases that kill
a million more Americans than AIDS every year one can only
shout, “That’s not FAIR!”
And what is the
funding for “orphan diseases”? An orphan disease is a rare
illness which has not been "adopted" by the pharmaceutical
industry because it provides little financial incentive for the
private sector to make and market new medications to treat or
prevent it. For these diseases it is especially important for
the government to step in with significantly greater research
funding.
There are six
thousand rare diseases such as Beckwith-Wiedemann Syndrome,
Muscular Dystrophy, Primary Biliary Cirrhosis, Cerebrotendinous Xanthoma,
Multiple Sclerosis, Wegener’s
Granulomatosis, Graves’ Disease, Frontotemporal Dementia,
hemophilia, Gaucher Disease, Goldenhar Syndrome, Autism,
Myasthenia Gravis, and Addison’s Disease. The total governmental
orphan-disease research allocation is $1.2 billion, (d) which is
only $200,000, on average, for each disease. That is grossly
insufficient.
The
disproportionate research allocation of $2.9 billion on one
disease, HIV/AIDS, is just the tip of the iceberg. The increase
in funding for AIDS since 1999 – just the increase – is greater
than the 2007 budget for almost every other disease except
cancer and CVD. Although the above statistics involve disease
research, one cannot help but notice that at present AIDS
funding levels, in two more years one will be able to say, “The
total amount spent on all AIDS programs is
1/5th of a Trillion dollars (f).
In
addition, the $29 billion Gates Foundation is spending many
billions on AIDS research and Warren Buffet has pledged $31
billion more to Gates for the Gates Foundation’s effort.
“But AIDS is a pandemic and it deserves more funding!” AIDS
activists argue. What do they need: more research dollars? No,
they need the exact same thing that has resulted in the 97% and
93% decrease in California’s and Illinois’s AIDS deaths: namely,
the effective drugs that have been developed, prevention
education, harm reduction policies (clean syringes for IV drug
users) and the development of health infrastructures so these
policies can be distributed.
I
am a proud member of
The FAIR Foundation (g) – “FAIR” stands for "Fair
Allocations in Research." Along with myself, there are thousands
of others in all fifty states from Maine to Hawaii who are
coming together through the FAIR Foundation to alert America and
our politicians on the need for change in our government’s
research funding policies.
“FAIR” believes a disease’s mortality rate should be given
emphasis in determining allocations, and other secondary factors
should be utilized to insure diseases that cause great suffering
but have low mortality rates, like rare or “orphan” diseases,
will also
receive increased (h) dollars. Research funds should not be
allocated based on Hollywood popularity or political
correctness.
It
is now time to redirect funding to diseases that are more
deserving and currently receiving billions less than AIDS,
including orphan diseases and the
sixteen (i) that kill over a million more Americans than
AIDS annually. Please endorse The FAIR Foundation’s efforts to
put an end to AIDS favoritism and recommend that all citizens
join their organization in demanding research funding that is
fair and equitable for
all.
Send the message above to your Senators and Representatives NOW
by copying and pasting the message above and using the “GO”
button on this page.
After you do that, JOIN The FAIR Foundation today (FREE) at
http://www.fairfoundation.org/join.htm.
Footnotes:
a.
http://www.fairfoundation.org/update.htm
b.
http://fairfoundation.org/quiz/quizanswer.htm (CA 97%
decline in newly infected patients; from 1992-2005 through
6/30/06, CA all patients = 88 percent decline; IL decline of 93
percent is in all patients)
c.
http://www.health.state.ny.us/nysdoh/hivaids/aidsny_01/section17.pdf
d.
http://www.fairfoundation.org/nih.htm
e.
http://www.fairfoundation.org/factslinks.htm
f.
http://www.kff.org/hivaids/loader.cfm?url=/commonspot/security/getfile.cfm&PageID=33622
g.
http://www.fairfoundation.org/
h.
http://fairfoundation.org/factors.htm
i.
http://www.fairfoundation.org/thesixteen.htm
Congress.org is a public service
of
Capitol Advantage and is powered by the award-winning
Capwiz™ grassroots advocacy solution. Capwiz
is used by over 1200 leading non-profits, trade associations and
media websites including AOL, Yahoo!, and MSN. If you would like
to test drive Capwiz for your own organization,
complete this form and they'll have a Capwiz site
customized just for you in just one business day. |
