Points of Interest on NIH Research Allocations as of 03/15/10

The CDC estimates 14,110 AIDS deaths in 2007 in the USA. To see the answer and the number of deaths in your state, click here. Note: we asked each state how many HIV/AIDS deaths they have; their answer: 10,111.

Cardiovascular Disease kills 864,000 every year, yet receives over 1/2 Billion less than AIDS with $26 spent on behalf of each CVD patient

The NIH is spending $3,032 on each citizen estimated as having HIV/AIDS

Diabetes kills more Americans than AIDS and breast cancer combined, yet the NIH spends only $42 on each  diabetic

Alzheimer's Disease kills 3.3 times more than AIDS, yet the NIH spends only $124 on each patient with Alzheimer's Disease

Parkinson's Disease death rate similar to AIDS yet the NIH spends $92 on each patient

Prostate cancer kills 2 times more than AIDS, yet the NIH spends only $171 on each patient with prostate disease

Hepatitis C (HCV) kills 12,000, yet the NIH spends only $23 on each HCV patient

Hepatitis B (HBV) kills 5,000, yet the NIH spends only $43 on each HBV patient

The flu (influenza) on average, now kills almost 4+ times more than AIDS. 
Flu: $327 million
AIDS: $2.3 Billion

COPD (Chronic Obstructive Pulmonary Dis.) = over 126,000 deaths yet the NIH spends only $7 on each patient

West Nile Virus cases in 2009: 637 cases and 28 deaths, which results in $1.5 million dollars spent in research per death. Does these facts justify this disparity in bio- medical research funding?

Sudden Infant Death Syndrome (SIDS) estimated deaths at 2,250. HIV/AIDS under 13 = thirteen deaths.

2010 funding request for HIV/AIDS = 25.8 Billion: $15.6 Billion for care, cash & housing assistance (HOPWA) for HIV patients & only .9 percent for prevention.

Total HIV/AIDS Funding since day one: $$ 330+ Billion dollars through 2010--over 1/3rd of a trillion dollars. ($150B thru 2004 from Henry J Kaiser Foundation and over $20+ Billion every year since then + Congress voted another $50 billion for global HIV, TB & Malaria + a significant portion of the $7.4 billion in the Stimulus Bill for the NIH Institutes will go to HIV because it is being distributed in pro-rata fashion based on the pervious year's funding when, as usual, HIV received 10 percent of the NIH budget.)

The infection rate for AIDS throughout the entire world is 1 percent or less except in two countries, Sub-Saharan Africa and the Caribbean. See page 8 from UNAIDS here (large file, please be patient). For a specific country, click here.

For AIDS in India, where estimates were 100% inflated until recently by UNAIDS (The Joint United Nations Programme on HIV/AIDS), click here.

SARS: "Current Situation" from the CDC states "there is no known SARS transmission anywhere in the world." Research monies  not disclosed by NIH. Press coverage:  disproportionate.

Monkeypox
cases confirmed in the USA: 37, deaths =0 in 2003. No recent reporting is available from the CDC.

Statistical supporting links may be viewed here

Color pie chart and graph illustrating disparities in funding may be viewed here

Updates on Funding for your Disease of Interest is here.

Sixteen diseases killed a million more American than HIV/AIDS annually in 1999. There are more now.

Please take a moment to view our 26-member Board of Directors of surgeons, medical directors, pharmacists, dentists and disease advocates

To review all FAIR Newsletters, click here

We appreciate your submitting news stories of interest to us at fair@dc.rr.com

To view a powerful 14 minute video by the American Diabetes Association and ABC Television, Click HERE

Every donation to FAIR counts! To make a gift in memory of a loved one or friend, to honor someone or to leave a legacy with estate planning, simply click here.

To email a template letter in support of fair funding to President Bush and your Congresspersons. Simply go here to contact them quickly and easily with a click, copy and paste.

View the latest (2008) reported HIV/AIDS USA funding billions and the amount for each state, most of which is for social programs, housing assistance, cash payments, meds, etc.

Worldwide, the most deaths be far are from non-communicable diseases: 16 million die of cardio-vascular disease, 7.3 million from cancer, 3.7 million from respiratory infections versus 3.1 million from HIV, a  communicable, STD
(sexually transmitted disease). See world clock here and click on "Death" in the middle column.

To send a prepared letter to the President and your Congresspersons in support of new organ donor policies to reverse USA's organ donor crisis, click here.

FAIR's Privacy Policy may be viewed here.

FAIR is an acronym for Fair Allocations In Research.

FAIR is fair.

Volume 8: Issue 1
 

FAIR NEWSLETTER: March 2010
 


The most amazing promotion of
organ donation by a individual in history

George Marcellos is conducting a 300 city student torch relay over two years with his "Truck of Life" to promote organ & tissue donations throughout the USA from Alaska to Maine to Florida to California and then to Argentina. This is George’s seventh campaign, the other six traversing Canada and Europe. This amazing trek is traversing the Western Hemisphere which is from the top of the North Pole (well, as close as he can get = Alaska) to the bottom of the South Pole in Argentina. Welcome George when he comes to your city/state: his schedule and be sure to click on the links in left column for videos of his students carrying the torch and US Senators endorsing him.

FAIR Template Letter co-signer published with full page article in WSJ

One of the co-signers of our template letters in support of new organ donor policies, Alex Tabarrok, had his superb article on these policies published in the Wall Street Journal. Indeed, the article was the entire front page of the “Weekend Journal” section of the WSJ and it endorsed them. Alex is a professor of economics at George Mason University and he is Director of research for the Independent Institute. Kudos to Alex!

FAIR applauds Sen. Coburn for blasting $$ spent on HIV and asks for help

Senator Tom Coburn, MD, of Oklahoma recently blasted the HIV international conference in Europe as a waster of money. Our CEO wrote Senator Coburn, congratulated him on his courageously speaking out and asked that he also address the outrageous favoritism given to HIV disease. We included the powerful video by the NIH's HIV Director, Anthony Fauci, MD, in which he admits their success against HIV is breathtaking with HIV/AIDS patients living normal lives.

AIDS: the end IS in sight

According to Brian Williams of the South African Centre for Epidemiological Modeling and Analysis in this report the solution to HIV is in sight and it won't take 40 years to do it. We agree with Brian that the solution is simple: provide the existing drugs and save billions that can go to other illnesses.

Organ donation CEO paid $487,225 but no support for reimbursing donors or their families

The total compensation for Tom Mone (seen at left), the CEO of just one organ procurement organization (OPO)--there are 58 of them--as reported in their IRS Form 990, was $487,225--more than President Obama. Six others had compensation totaling more than $1.2 million yet they and their organization do not support financial compensation to donors or their families--not even to pay funeral expenses for the poor donor families. The full story can be read in Mone's Op-ed to the NY Times opposing Presumed Consent and in our CEO's factual rebuttal. Mone, whom FAIR respects, has seen his OPO take in $54.5 million dollars in revenue in just one year by arranging transplants. We believe OPO's deriving such great revenue from “deceased” donors’ organs and tissues without supporting compensation to the deceased-donor families is unconscionable.

Medical News Today publishes Board members plea for new organ donor policies

 Medical News Today published William's submission regarding the failure of altruism in meeting the demand for organs and the need for new organ-donor policies that FAIR is promoting to reverse America's organ-donor crisis.




 

The United Kingdom's Wales institutes Presumed Consent Policy

Welsh assembly's health minister, Edwina Hart, took a bold step and has instituted a form of Presumed Consent in Wales, the first place in the UK to take such a courageous stand due to the large numbers of patients dying while waiting for an organ and the failure of "altruism" to meet the large demand.


Two FAIR members use their web organizations to help renal patients 

FAIR members Klaus Buschan (seen on the left) and Manny Hernandez have two internet groups set up to help patients with renal illness. Klaus's group helps kidney donors and recipients with the goal of saving lives and it is called Renal Rangers and Manny's site is named and available at tudiabetes.org. Kudos to Klaus and Manny!
 

Should those who sign up to donate get preference? Absolutely.

Israel also thinks so and we agree. Starting next year in Israel, people who volunteer to donate their organs when they die will be higher on the waiting list if they ever need a transplant. Full Story. Our CEO also believes this should apply to the policy of Presumed Consent. If you opt out of donating an organ, you will not be eligible to receive an organ. What goes around, comes around.

Excellent Reporting by MN Journalists
on organ-donor crisis and solutions

We applaud Josephine Marcotty, Healthcare Journalist from the Minneapolis Star Tribune and her associates who recently wrote a series addressing the increasing demand for kidneys and the organ donor crisis in America.

2011 NIH funding for each
disease now available

The 2011 estimated funding by the NIH is now available and it shows Alzheimer's at $480 million, diabetes at $1.78 billion, breast cancer $765 million, cardiovascular disease at $ 2.1 billion, HIV/AIDS at $3.2 billion and for over 6,000 rare illnesses only $467 million, down from $1.2billion in 2006.

Stimulus bill funding for
each disease now reported

The stimulus bill (American Recovery & Reinvestment Act ARRA) has resulted in the NIH spending additional research funds on most diseases--how much on your disease of interest? Click here and see "2010 Estimated ARRA." 

Michigan: another state reporting very
low death total from HIV/AIDS

The HIV Epidemiology Manager for the state of Michigan recently updated their statistics that illustrate the continuing success against HIV/AIDS in this country. In Michigan deaths from HIV/AIDS have now plummeted 88 percent from their high to a low of 109. To see the success of all states, click the logo.
 



FAIR's CEO expresses objections to NVHR
efforts for hepatitis C patients

FAIR's CEO, Dr. Darling, corresponded with the director of the National Virus Hepatitis Roundtable (NVHR), Martha Saly, and expressed disappointment with the NVHR and their lack of focus on fighting for more bio-medical research for mono-infected hepatitis C patients. Dr. Darling also expressed dismay at their catering to the HIV advocates who have infiltrated their organization and comprise a significant portion of their officers/Board members, etc. The NVHR applauds and supports efforts for old issues such as epidemiology and disease history without proper emphasis on the need for new treatments to conquer this malady. Darling considered removing FAIR from its present position as a member organization but opted to stay and offer constructive input for change.

Is this FAIR? We don't think so either.
Our Government's Bio-Medical Research Allocations
by the NIH and Congress

2011 Funding announced:

  • HIV/AIDS increased $210 million

  • Cardiovascular disease decreased $200 million

  • COPD raised $11 million

  • Diabetes raised $26 million

  • Parkinson's raised $5 million

  • Alzheimer's 2009 figure today is $200 million less than what has been reported previously

  • Overall cancer funding up $500 million

  • Breast cancer funding up $24 million

FAIR adds Links page--let us know if you
want your organization included

We have added a page on which we are posting links to other organizations. If you would like your a link to your organization added here, just let us know at our email address: fair@dc.rr.com.
 

State Map to Donate Life Registry to become an organ donor

One donor can save 8 lives!

Exactly who is receiving HIV research dollars?
Are they all in the USA? You'll be surprised

Where is the $3.184 billion in HIV research being spent and who is receiving the exorbitant funding? Click on the hands reaching out for the cash.

 

Do you auction items on E-bay?

If you sell an item on E-bay and participate in their program to benefit non-profit organizations and you would like to include FAIR in your philanthropy, you can easily donate a percentage of your revenue received to FAIR--as little or large a percent as you wish to donate. To learn how, click on the E-bay logo and we thank you!
 


FAIR's Board of Directors at work
In our continuing "get acquainted with the Board" series,
we are honored to profile the following Board members. 

We are proud to announce the addition of Kathy Teal to our Board of Directors. Kathy has over 25 years of experience in advertising and marketing communications. In 1986, Teal founded her own creative services firm. As a busy entrepreneur serving private and public sectors, Cathy always found time to help non-profit organizations. In recognition of these efforts, the National Association of Women Business Owners awarded her Special Recognition. Cathy holds a Bachelor of Fine Arts degree from Middle Tennessee State University. Bio

Art Curley, Attorney-at-Law, is President of Bradley, Curley, Asiano, Barrabee & Gale, PC, a law firm in Larkspur, CA. A trial attorney, Art has given hundreds of risk management courses that include education on favoritism granted AIDS in the legal system and its attendant obligations and restrictions placed on physicians and dentists. Art's extensive CV includes being a member of the American Board of Trial Advocates.

Kress Darling is FAIR's Vice President as well as our patient advocate for patients suffering from COPD (Chronic Obstructive Pulmonary Disease), migraine headache & osteoporosis.

 

 

John Fung, MD, FACS, is Chairman of the Department of General Surgery and Director of the Transplant Center at the Cleveland Clinic Foundation. Dr. Fung performed the first high-profile transplant on HIV patient and strident AIDS activist Larry Kramer who calls Dr. Fung "a great man." Dr. Fung has received the AASLD (American Assoc. for the Study of Liver Diseases) Achievement in Liver Transplantation Award. Web CV


Robert Gish, MD, Medical Director of the Liver Disease Management and Transplant Program at California Pacific Medical Center (CPMC); Division Chief, Hepatology and Complex Gastroenterology at CPMC Physicians Foundation; Associate Clinical Professor of Medicine at the University of Nevada in Reno and at University of CA San Francisco; Member of the American Association for the Study of the Liver, the American Gastroenterological Association, the American Society of Transplant Physicians, and the International Liver Transplant Society.
San Francisco, CA
Web CV

FAIR continues its dental plan for transplant patients

If you have passed all of your pre-transplant requirements except for dental due to financial hardship, contact us and we will attempt to find a dentist that will help you pro-bono. We have helped many patients in the past and may be able to assist you also. For a complete summary of our dental plan for transplant patients, click the smile and download the information if you are in need of help.

FAIR Profiles States

What are the top ten causes of death for the citizens of Alabama and Arkansas as reported by the Centers for Disease Control and Prevention (CDC)? Is HIV/AIDS one of them? If not, how do the top ten compare with HIV? For the top ten causes of death in these states and other interesting info, click on their map. For HIV/AIDS deaths in those and all other states, click here.

Your Disease's research dollars--where are they going?

Have you wondered where the money being spent on your disease is actually going--to what researcher in what country? Click here, find your illness, then click on the budgeted amount to get the full list of people researching your illness.
 



yet it still receives 10 percent of the entire research budget

  • Michigan HIV/AIDS deaths plummet 46 percent from 2009 to 2010.

  • HIV/AIDS given another $98 million for research for 2011, total now $3.184 billion.

The States continue great success against HIV/AIDS

 What percent decline in AIDS deaths have been achieved in America's states? Illinois 93, Kentucky98, Minnesota 90, Oklahoma 97, Alaska 84, Connecticut91, Hawaii93, Pennsylvania 98, W. Virginia 92 and so on throughout the USA reflecting the excellent success of HIV drugs, prevention education and harm reduction policies (providing clean syringes to IV drug users). Click the map to see all states and their progress.
 

FAIR's Press Release: Immediate Action Needed to Reverse America's Organ-Donor Crisis

Every hour a person on the waiting list or one who was delisted due to becoming too sick to be transplanted dies. You can help give all in need the "Gift of Life" by simply copying this opinion editorial and sending it to media and President Obama. Click on the Please Help logo!

Waiting for a Liver Transplant?

Are you waiting for a liver transplant?  Which areas/hospitals are transplanting years sooner than others. To calculate your MELD score and find the region/state that is transplanting at the lowest MELD score, click the liver.


The HIV/AIDS Clinical Trials
Parade Continues

In May there were 1,742 HIV/AIDS Clinical Trials, in August, 1,865, in October 2,233, Now there are 4,241 listed for HIV and 4,493 for AIDS. Find out how many for your disease by clicking here. For example, there are a total of only 768 for Alzheimer's Disease, 953 for COPD, and 923 for hepatitis C (many involving HIV & HCV).

World news reports for HIV like no other illness

What kind of attention does HIV get in the media. Well, we know it preoccupies much of the media health focus as evidenced by these numerous articles, indeed, hundreds of HIV news from one source alone since our last newsletter.


 

FAIR Members' Soapbox Alerts continue

...this month to those suffering from our focus disease of the month, diabetes and also for those suffering from diabetes and cardiovascular disease. To easily send an alert today to President Obama, VP Biden, your Senators and Representatives in support of fairer funding for this illness, click the Soapbox logo!

*Focus Disease of the Month: Diabetes*

  • Diabetes is a disease in which the body does not produce or properly use insulin. Insulin is a hormone that is needed to convert sugar, starches and other food into energy needed for daily life.

  • Diabetes is deadly; it kills more Americans than AIDS and breast cancer combined. Diabetes is one of the top six causes of death in the USA and studies indicate that diabetes is generally under-reported on death certificates, particularly in the cases of older persons with multiples chronic conditions such as heart disease and hypertension. Because of this, the toll of diabetes is believed to be much higher than officially reported.

  • Diabetes is common: four years ago there were 16 million with diabetes. Now there are there are 23.6 million people in the United States, or 8 percent of the population, who have diabetes. The total prevalence of diabetes increased 13.5 percent from 2005-2007. Compare to HIV/AIDS: CDC estimates put the number with HIV/AIDS at 1 million.

  • Diabetes symptoms: excessive thirst, extreme hunger, unusual weight loss, extreme fatigue, frequent urination, blurry vision and irritability. You can also take the American Diabetes Association's Online Diabetes Risk Test to find out if you are at risk for diabetes.

  • Diabetes is serious; it is the number one cause of blindness, kidney disease and stroke. In fact, more than 65 percent of people with diabetes die from heart disease or stroke.

  • Diabetes and CVD: Yahoo News: "Diabetes heart risk = 15 years of aging." Diabetics are at risk of developing cardiovascular disease, one of the world's biggest killers, 15 years earlier than other people so a diabetic 40 years of age has the same potential for a stroke as a healthy person of age 55. Full story.

  • Diabetes, Genetics and Race: Do genetics and race play a role in both Type 1 and Type 2 diabetes? Yes! For a full explanation on the role of genetics from the ADA, click here. Hispanics are almost twice as likely to have diabetes as non-Hispanics and nearly 25 percent of all Hispanics, age 45-74, have it. African-Americans are almost twice as likely to have diabetes as the general population and 11.4 percent over 20 years of age have it

  • Diabetes and Age: The risk of diabetes increases with age. About 21 percent of Americans aged 60 years or older have diabetes. This compares to approximately 2 percent for people 20 to 39 years old and about 10 percent for those aged 40-59 years.

  • Diabetes is costly; The total annual economic cost of diabetes in 2007 was estimated to be $174 billion. Medical expenditures totaled $116 billion and were comprised of $27 billion for diabetes care, $58 billion for chronic diabetes-related complications, and $31 billion for excess general medical costs.

  • Diabetes treatment:
    1. In order to survive,
    people with type 1 diabetes must have insulin delivered by a pump or injections.
    2. Many people with type 2 diabetes can control their blood glucose by following a careful diet and exercise program, losing excess weight, and taking oral medication.
    3. Many people with diabetes also need to take medications to control their cholesterol and blood pressure.
    4. Among adults with diagnosed diabetes, about 12 percent take both insulin and oral medications, 19 percent take insulin only, 53 percent take oral medications only, and 15 percent do not take either insulin or oral meds.

  • Diabetes and Research Funding: The NIH is spending only $42 on each diabetic in research in 2007 compared to $3,032 on each HIV/AIDS patient

  • Video: To view a powerful 14 minute video by the American Diabetes Association and ABC Television with striking quotes by many well-known celebrities and politicians that illustrates the need for more fair and equitable funding, Click HERE

    Diabetes and all other diseases except HIV/AIDS would receive larger research allocations under the FAIR Foundation's policies.

Statistics from the American Diabetes Association and the Centers for Disease Control and Prevention (CDC).

The FAIR Foundation is growing fast, but we need more members to change Congress and the NIH. Please help us by forwarding this Newsletter on to your associates and friends. With strength in numbers, we WILL achieve fair and equitable NIH distributions for ALL non-AIDS diseases. Member sign-up information is confidential.  

 Please consider FAIR this year for
your tax-deductible contributions...

As you consider your year-end tax-deductible donations, we would be most grateful for your financial support. Please help us benefit all who need fair and equitable research allocations for their disease of interest and to achieve new organ-donor policies to reverse the organ-donor crisis in America. Indeed, we are the only nonprofit organization solely dedicated to fairness in research funding and we respectfully ask for your help in funding our effort. Remember, we have no paid employees. Indeed; we are all volunteers so every dollar of your donation will go to continuing our educating Congress and the NIH on the need for change to insure fair funding for your disease of interest. Please make your donation on our secure website or mail a check made out to the FAIR Foundation at 78-629 Bougainvillea Drive, Palm Desert, CA 92211. Thank you in advance for your generosity!  

The FAIR Foundation; E-mail fair@dc.rr.com FAIR is an apolitical 501 (c)(3) organization.

FAIR Mission Statement: The FAIR Foundation is dedicated to fair and equitable distribution of research funds by the government for all diseases, including the 16 that kill a million more Americans than AIDS. A disease’s mortality rate shall be given emphasis in determining allocations and other secondary factors shall be utilized to insure diseases that cause great suffering but have low mortality rates will also receive significantly increased funding.


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