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Points of Interest
on NIH Research
Allocations as of 03/15/10
The CDC estimates
14,110 AIDS deaths in 2007 in
the USA. To see the answer and the
number of deaths in your state, click
here.
Note: we asked each state how many HIV/AIDS deaths they have; their
answer:
10,111.
Cardiovascular Disease kills 864,000 every year, yet
receives over 1/2 Billion less than AIDS
with $26 spent on behalf of each CVD patient
The NIH is spending $3,032 on each
citizen
estimated as having HIV/AIDS
Diabetes kills more Americans than AIDS and breast cancer combined, yet the
NIH spends only $42 on each diabetic
Alzheimer's Disease kills 3.3 times more than AIDS, yet the NIH
spends only $124 on each patient with Alzheimer's Disease
Parkinson's Disease death rate similar to AIDS yet the NIH
spends $92 on each patient
Prostate cancer kills 2 times more than AIDS,
yet the NIH spends only $171 on each patient with prostate disease
Hepatitis C (HCV) kills 12,000, yet the NIH spends
only $23 on each HCV patient
Hepatitis B (HBV) kills 5,000, yet the NIH spends only
$43 on each HBV
patient
The flu (influenza) on average, now kills almost
4+ times more
than AIDS.
Flu: $327 million AIDS: $2.3 Billion
COPD (Chronic Obstructive Pulmonary Dis.) =
over 126,000 deaths yet the NIH spends only
$7 on each patient
West Nile Virus
cases in 2009: 637 cases and 28 deaths, which results in
$1.5 million dollars spent in research per death.
Does these facts justify
this
disparity in bio-
medical research funding? Sudden Infant Death Syndrome (SIDS) estimated deaths
at 2,250. HIV/AIDS under 13 =
thirteen deaths.
2010 funding request for HIV/AIDS = 25.8 Billion: $15.6
Billion for care, cash & housing assistance (HOPWA)
for HIV patients & only .9 percent for prevention.
Total HIV/AIDS Funding since day one: $$ 330+
Billion dollars through 2010--over 1/3rd of a trillion dollars.
($150B thru 2004 from
Henry J Kaiser Foundation and over $20+ Billion every year since
then + Congress voted another $50 billion for global HIV, TB &
Malaria + a significant portion of the $7.4 billion in the Stimulus
Bill for the NIH Institutes will go to HIV because it is being
distributed in pro-rata fashion based on the pervious year's funding
when, as usual, HIV received 10 percent of the NIH budget.)
The infection rate for AIDS throughout the entire world is
1 percent or less
except in two countries, Sub-Saharan Africa and the Caribbean. See page 8
from UNAIDS
here (large file, please be patient). For a specific country,
click
here. For AIDS in India, where estimates were 100%
inflated until recently by
UNAIDS (The
Joint United Nations Programme on HIV/AIDS), click
here.
SARS: "Current Situation" from the
CDC states
"there is no known SARS transmission anywhere in the
world." Research monies not disclosed by NIH. Press
coverage: disproportionate.
Monkeypox cases confirmed in the USA:
37,
deaths =0 in 2003. No recent reporting is available from the
CDC.
Statistical supporting links may be viewed
here Color pie chart and graph illustrating disparities in funding may be
viewed here Updates on Funding for your Disease of Interest is
here.
Sixteen
diseases killed a million more American than HIV/AIDS
annually in 1999. There are more now. Please take a moment to view our 26-member
Board of
Directors of surgeons, medical directors, pharmacists,
dentists and disease advocates To review all FAIR Newsletters, click
here
We appreciate your submitting news stories of interest to us at
fair@dc.rr.com To view a powerful 14 minute video by the American Diabetes
Association and ABC Television,
Click HERE Every donation to FAIR counts! To make a gift in memory of a loved
one or friend, to honor someone or to leave a legacy with estate
planning, simply click
here.
To email a
template letter in support of fair funding
to President
Bush and your Congresspersons. Simply go
here to contact them quickly and easily
with a click,
copy and paste.
View the latest (2008) reported HIV/AIDS USA funding billions and the
amount for each state, most of which is for social programs,
housing assistance, cash payments, meds, etc.
Worldwide, the most deaths be far are from non-communicable
diseases: 16 million die of cardio-vascular disease, 7.3 million from cancer,
3.7 million from respiratory infections versus 3.1 million from
HIV, a communicable, STD
(sexually transmitted disease).
See world clock
here
and click on "Death" in the middle column.
To send a prepared letter to the President and your Congresspersons
in support of new organ donor policies to reverse USA's organ donor
crisis, click
here.
FAIR's Privacy Policy may be viewed
here.
FAIR is an acronym for Fair
Allocations
In Research.
FAIR is fair. |
Volume 8: Issue 1 |
FAIR NEWSLETTER: March 2010
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The most amazing
promotion of
organ donation by a individual in history
George
Marcellos is conducting a 300
city student torch relay over two years
with his "Truck
of Life"
to promote organ & tissue donations
throughout the USA from Alaska to Maine
to Florida to California and then to
Argentina. This is
George’s seventh campaign, the other six
traversing Canada and Europe. This
amazing trek is traversing the Western
Hemisphere which is from the top of the
North Pole (well, as close as he can get
= Alaska) to the bottom of the South
Pole in Argentina. Welcome George when
he comes to your city/state:
his schedule and be sure to click on
the links in left column for videos of
his students carrying the torch and US
Senators endorsing him.
FAIR Template Letter
co-signer published with full page article
in WSJ
One
of the co-signers of
our template letters in support of new
organ donor policies, Alex Tabarrok,
had
his superb article on these policies
published in the Wall Street Journal.
Indeed, the article was the entire front
page of the “Weekend Journal” section of
the WSJ and it endorsed them. Alex is a
professor of economics at George Mason
University and he is Director of
research for the Independent Institute.
Kudos to Alex!
FAIR applauds Sen. Coburn for
blasting $$ spent on HIV and asks for help
Senator
Tom Coburn, MD, of Oklahoma recently
blasted the HIV international conference in Europe
as a waster of money. Our CEO
wrote Senator Coburn, congratulated him on his
courageously speaking out and asked that he also address
the outrageous favoritism given to HIV disease. We
included the powerful video by the NIH's HIV Director,
Anthony Fauci, MD, in which he admits their success
against HIV is breathtaking with HIV/AIDS patients
living normal lives.
AIDS: the end IS in sight
According
to Brian Williams of the South African
Centre for Epidemiological Modeling and Analysis
in
this report the solution to HIV is in sight and it
won't take 40 years to do it. We agree with Brian that
the solution is simple: provide the existing drugs and
save billions that can go to other illnesses.
Organ donation CEO paid $487,225
but no support for reimbursing donors or their families
The
total compensation for Tom Mone (seen at left), the CEO
of just one organ procurement organization (OPO)--there are 58
of them--as reported in their IRS
Form 990, was $487,225--more than President Obama. Six others had compensation totaling more than $1.2 million yet they
and their organization do not support
financial compensation to donors or their families--not
even to pay funeral expenses for the poor donor families. The
full story
can be read in Mone's Op-ed to the NY Times opposing
Presumed Consent and in our CEO's factual rebuttal.
Mone, whom FAIR respects, has seen his OPO take in $54.5
million dollars in revenue in just one year by arranging
transplants. We believe OPO's deriving
such great revenue from “deceased” donors’ organs and
tissues without supporting compensation to the
deceased-donor families is unconscionable.
Medical News Today
publishes Board members plea for new organ
donor policies

Medical News Today published
William's
submission regarding the failure of
altruism in meeting the demand for organs
and the need for
new organ-donor policies that FAIR is
promoting to reverse America's
organ-donor crisis.
The United Kingdom's
Wales institutes Presumed Consent Policy
Welsh
assembly's health minister,
Edwina Hart, took a bold step and
has instituted a form of Presumed Consent in
Wales, the first place in the UK to take
such a courageous stand due to the large
numbers of patients dying while waiting for
an organ and the failure of "altruism" to
meet the large demand.
Two
FAIR members use their web organizations
to help renal patients
 FAIR
members Klaus Buschan (seen on the left)
and Manny Hernandez have two internet
groups set up to help patients with
renal illness. Klaus's group helps
kidney donors and recipients with the
goal of saving lives and it is called
Renal Rangers and Manny's site is
named and available at
tudiabetes.org. Kudos to Klaus and
Manny!
Should those who sign
up to donate get preference? Absolutely.
Israel also thinks so and
we agree. Starting next year in Israel,
people who volunteer to donate their organs
when they die will be higher on the waiting
list if they ever need a transplant.
Full Story. Our CEO also believes this
should apply to the policy of
Presumed Consent. If you opt out of
donating an organ, you will not be eligible
to receive an organ. What goes around, comes
around.
Excellent Reporting by
MN Journalists
on organ-donor crisis and solutions
We
applaud Josephine Marcotty, Healthcare
Journalist from the Minneapolis Star Tribune
and her associates who recently
wrote a series addressing the increasing
demand for kidneys and the organ donor
crisis in America.
2011 NIH funding for
each
disease now available
The
2011 estimated funding by the NIH is now
available and it shows Alzheimer's at $480
million, diabetes at $1.78 billion, breast
cancer $765 million, cardiovascular disease
at $ 2.1 billion, HIV/AIDS at $3.2 billion
and for over 6,000 rare illnesses only $467
million, down from $1.2billion in 2006.
Stimulus bill funding
for
each disease now reported

The stimulus bill (American
Recovery & Reinvestment Act ARRA) has
resulted in the NIH spending additional
research funds on most diseases--how much on
your disease of interest? Click
here and see "2010 Estimated ARRA."
Michigan: another state reporting very
low
death total from HIV/AIDS
The
HIV
Epidemiology Manager for the state of
Michigan recently updated
their statistics that illustrate the
continuing success against HIV/AIDS in this
country. In Michigan deaths from HIV/AIDS
have now plummeted 88 percent from their
high to a low of 109. To see the success
of all states, click the logo.
FAIR's
CEO expresses objections to NVHR
efforts for hepatitis C patients
FAIR's
CEO, Dr. Darling,
corresponded with the director of the
National Virus Hepatitis Roundtable
(NVHR), Martha Saly, and expressed
disappointment with the NVHR and their lack
of focus on fighting for more bio-medical
research for mono-infected hepatitis C
patients. Dr. Darling also expressed dismay
at their catering to the HIV advocates who
have infiltrated their organization and
comprise a significant portion of their
officers/Board members, etc. The NVHR
applauds and supports efforts for old issues
such as epidemiology and disease history
without proper emphasis on the need for new
treatments to conquer this malady. Darling
considered removing FAIR from its present
position as a member organization but opted
to stay and offer constructive input for
change.
Is this FAIR? We don't
think so either.
Our Government's
Bio-Medical Research Allocations
by the NIH and Congress

2011 Funding announced:
-
HIV/AIDS increased $210 million
-
Cardiovascular disease decreased $200
million
-
COPD
raised $11 million
-
Diabetes raised $26 million
-
Parkinson's raised $5 million
-
Alzheimer's 2009 figure today is $200
million less than what has been reported
previously
-
Overall cancer funding up $500 million
-
Breast
cancer funding up $24 million
FAIR adds Links
page--let us know if you
want your organization included
We have added a page on which we are posting
links to other organizations. If you would
like your a link to your organization added
here, just let us know at our email
address:
fair@dc.rr.com.
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State Map to Donate Life Registry to become
an organ donor |
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One donor can save 8
lives!
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Exactly who is receiving HIV
research dollars?
Are they all in the USA? You'll be surprised

Where is the $3.184 billion in HIV research being spent
and who is receiving the exorbitant funding? Click on
the hands reaching out for the cash.
Do you
auction items on E-bay?
If
you sell an item on E-bay and participate in their
program to benefit non-profit organizations and you
would like to include FAIR in your philanthropy, you can
easily donate a percentage of your revenue received to
FAIR--as little or large a percent as you wish to
donate. To learn how, click on the E-bay logo and we
thank you!
FAIR's Board of Directors at work
In our continuing "get acquainted with
the Board" series,
we are
honored to profile the following Board
members.
We
are proud to announce the addition of
Kathy Teal to our Board of Directors.
Kathy
has over 25
years of experience in advertising and
marketing communications. In 1986, Teal
founded her own creative services firm.
As a busy entrepreneur serving private
and public sectors, Cathy always found
time to help non-profit organizations.
In recognition of these efforts, the
National Association of Women Business
Owners awarded her Special Recognition.
Cathy holds a Bachelor of Fine Arts
degree from Middle Tennessee State
University. Bio

Art Curley, Attorney-at-Law, is
President of Bradley, Curley, Asiano,
Barrabee & Gale, PC, a law firm in
Larkspur, CA. A trial attorney, Art has
given hundreds of risk management
courses that include education on
favoritism granted AIDS in the legal
system and its attendant obligations and
restrictions placed on physicians and
dentists. Art's
extensive CV includes being a member
of the
American Board of Trial Advocates.

Kress Darling is FAIR's Vice President
as well as our patient advocate for
patients suffering from COPD (Chronic
Obstructive Pulmonary Disease), migraine
headache & osteoporosis.

John Fung, MD, FACS, is
Chairman of the Department of General
Surgery and Director of the Transplant
Center at the Cleveland Clinic
Foundation. Dr. Fung performed the first
high-profile transplant on HIV patient
and strident AIDS
activist Larry Kramer who calls Dr.
Fung "a great man." Dr. Fung has
received the AASLD (American Assoc. for
the Study of Liver Diseases) Achievement
in Liver Transplantation
Award.
Web CV
Robert
Gish, MD, Medical Director of the Liver
Disease Management and Transplant
Program at California Pacific Medical
Center (CPMC); Division Chief,
Hepatology and Complex Gastroenterology
at CPMC Physicians Foundation; Associate
Clinical Professor of Medicine at the
University of Nevada in Reno and at
University of CA San Francisco; Member
of the American Association for the
Study of the Liver, the American
Gastroenterological Association, the
American Society of Transplant
Physicians, and the International Liver
Transplant Society.
San Francisco, CA
Web CV
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FAIR continues its
dental plan for transplant patients
If
you have passed all of your pre-transplant requirements
except for dental due to financial hardship, contact us
and we will attempt to find a dentist that will help you
pro-bono. We have helped many patients in the past and
may be able to assist you also. For a complete summary
of our dental plan for transplant patients, click the
smile and download the information if you are in need of
help.
FAIR Profiles States
 What
are the top ten causes of death for the citizens of
Alabama and Arkansas as reported
by the Centers for Disease Control and Prevention (CDC)?
Is HIV/AIDS one of them? If not, how do the top ten
compare with HIV? For the top ten causes of death in
these states and other interesting info,
click on their map. For HIV/AIDS deaths in those and all
other states, click
here.
Your Disease's research
dollars--where are they going?
Have
you wondered where the money being spent on your disease
is actually going--to what researcher in what country?
Click
here, find your illness, then click on the budgeted
amount to get the full list of people researching your
illness.
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yet it still
receives 10 percent of the entire research
budget
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Michigan HIV/AIDS deaths
plummet
46 percent from 2009 to 2010.
-
HIV/AIDS given another $98 million for
research for 2011, total now $3.184
billion.
The
States continue great success against
HIV/AIDS

What percent
decline in AIDS deaths have been achieved in America's
states? Illinois
↓93, Kentucky↓98,
Minnesota
↓90, Oklahoma
↓97, Alaska
↓84, Connecticut↓91,
Hawaii↓93, Pennsylvania
↓98, W. Virginia
↓92 and so on throughout the USA
reflecting the excellent success of HIV drugs,
prevention education and harm reduction policies
(providing clean syringes to IV drug users). Click
the map to see all states and their progress.
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FAIR's Press Release:
Immediate Action Needed to Reverse America's
Organ-Donor Crisis
Every
hour a person on the waiting list or one
who was delisted due to becoming too sick to
be transplanted dies. You can help give all
in need the "Gift of Life" by simply copying
this opinion editorial and sending it to media
and President Obama. Click on the Please Help logo!
Waiting
for a Liver Transplant?
Are
you waiting for a liver transplant?
Which areas/hospitals are transplanting
years sooner than others. To calculate
your MELD score and find the region/state
that is transplanting at the lowest MELD
score, click the liver.
The HIV/AIDS
Clinical Trials
Parade Continues
In May there
were
1,742
HIV/AIDS Clinical Trials, in August, 1,865, in October
2,233, Now there are 4,241
listed for HIV and 4,493 for
AIDS. Find out how many for your disease
by clicking
here. For example, there are a total of only
768 for Alzheimer's
Disease, 953 for COPD, and 923 for hepatitis C (many
involving HIV & HCV).
World news reports for
HIV like no other illness
What kind of attention does HIV get in the
media. Well, we know it preoccupies much of
the media health focus as evidenced by
these
numerous articles, indeed, hundreds of HIV news from one source alone since our last
newsletter.
FAIR Members' Soapbox Alerts continue
...this month to those suffering
from our focus disease of the month, diabetes and also for
those suffering from diabetes and cardiovascular disease. To easily send an alert
today to
President Obama, VP Biden, your Senators and
Representatives in support of fairer funding for this
illness, click the Soapbox logo!
*Focus Disease of the Month:
Diabetes*
-
Diabetes is a disease in which the
body does not produce or properly use insulin. Insulin is a
hormone that is needed to convert sugar, starches and other
food into energy needed for daily life.
-
Diabetes is deadly; it kills more
Americans than AIDS and breast cancer
combined. Diabetes is one of the top six causes
of death in the USA and studies indicate that diabetes is
generally under-reported on death certificates, particularly
in the cases of older persons with multiples chronic
conditions such as heart disease and hypertension. Because
of this, the toll of diabetes is believed to be much higher
than officially reported.
-
Diabetes is common: four years ago
there were 16 million with diabetes. Now there are there are
23.6 million people in the United States, or 8 percent of the
population, who have diabetes. The total prevalence of
diabetes increased 13.5 percent from 2005-2007. Compare to HIV/AIDS: CDC estimates
put the number with HIV/AIDS at 1 million.
-
Diabetes symptoms: excessive thirst,
extreme hunger, unusual weight loss, extreme fatigue,
frequent urination, blurry vision and irritability.
You can also take the American
Diabetes Association's
Online Diabetes Risk Test to find out if you are at risk
for diabetes.
-
Diabetes is serious;
it is the number one cause of blindness, kidney disease and
stroke. In fact, more than 65 percent of people with diabetes die
from heart disease or stroke.
-
Diabetes and CVD: Yahoo News:
"Diabetes heart risk = 15 years of aging." Diabetics are at
risk of developing cardiovascular disease, one of the
world's biggest killers, 15 years earlier than other people
so a diabetic 40 years of age has the same potential for a
stroke as a healthy person of age 55.
Full story.
-
Diabetes, Genetics and Race: Do genetics
and race play a role in both Type 1 and Type 2 diabetes? Yes! For a
full explanation on the role of genetics from the ADA, click
here.
Hispanics are almost twice as likely
to have diabetes as non-Hispanics and nearly 25 percent of all
Hispanics, age 45-74, have it. African-Americans are almost twice as
likely to have diabetes as the general population and 11.4
percent over 20 years of age have it
-
Diabetes and Age:
The
risk of diabetes increases with age. About 21 percent of
Americans aged 60 years or older have diabetes. This
compares to approximately 2 percent for people 20 to 39
years old and about 10 percent for those aged 40-59 years.
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Diabetes is costly; The total annual
economic cost of diabetes in 2007 was estimated to be $174
billion. Medical expenditures totaled $116 billion and were
comprised of $27 billion for diabetes care, $58 billion for
chronic diabetes-related complications, and $31 billion for
excess general medical costs.
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Diabetes treatment: 1. In order to survive,
people with type 1 diabetes must
have insulin delivered by a pump or injections.
2. Many people with type 2 diabetes can control their
blood glucose by following a careful diet and exercise
program, losing excess weight, and taking oral medication.
3. Many people with diabetes also need to take
medications to control their cholesterol and blood pressure.
4. Among adults with diagnosed diabetes, about 12
percent
take both insulin and oral medications, 19 percent take insulin
only, 53 percent take oral medications only, and 15 percent do not take
either insulin or oral meds.
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Diabetes and Research Funding: The NIH is spending only
$42 on each diabetic in research in 2007
compared to $3,032 on each HIV/AIDS
patient.
-
Video: To view a powerful 14 minute
video by the American Diabetes Association and ABC
Television with striking quotes by many well-known
celebrities and politicians that illustrates the need for
more fair and equitable funding,
Click HERE
Diabetes and all other diseases except HIV/AIDS would
receive larger research allocations under the FAIR
Foundation's policies.
Statistics from the
American
Diabetes Association and the
Centers for Disease Control and Prevention (CDC).
The FAIR Foundation is growing fast, but
we need more members to change Congress and the NIH.
Please help us by forwarding this Newsletter on to your
associates and friends. With strength in numbers, we
WILL achieve fair and equitable NIH distributions for
ALL non-AIDS diseases. Member sign-up information is
confidential.
Please
consider FAIR this year for
your tax-deductible contributions...
As
you consider your year-end tax-deductible donations, we
would be most grateful for your financial support.
Please help us benefit all who need fair and equitable
research allocations for their disease of interest and to
achieve new organ-donor policies to reverse the organ-donor
crisis in America. Indeed, we are the only nonprofit
organization solely dedicated to fairness in research funding
and we respectfully ask for your help in funding our effort.
Remember, we have no paid employees. Indeed; we are all
volunteers so every dollar of your donation will go to
continuing our
educating Congress and the NIH on the need for change to
insure fair funding for your disease of interest. Please
make your donation on our secure website or mail a check made out to the FAIR
Foundation at 78-629 Bougainvillea Drive, Palm Desert, CA 92211. Thank
you in advance for your generosity!
The FAIR Foundation;
E-mail fair@dc.rr.com
FAIR is an apolitical 501 (c)(3) organization.
FAIR Mission Statement:
The FAIR Foundation is
dedicated to fair and equitable distribution of
research funds by the government for all diseases, including the 16
that kill a million more Americans than AIDS. A disease’s mortality rate
shall be given emphasis in determining allocations and other
secondary factors shall be utilized to insure diseases
that cause great suffering but have low mortality rates will
also receive significantly increased funding.
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