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Points of Interest
on NIH Research
Allocations as of 06/15/10
The CDC estimates
14,110 AIDS deaths in 2007 in
the USA. To see the answer and the
number of deaths in your state, click
here.
Note: we asked each state how many HIV/AIDS deaths they have; their
answer:
10,111.
Cardiovascular Disease kills 864,000 every year, yet
receives over 1/2 Billion less than AIDS
with $26 spent on behalf of each CVD patient
The NIH is spending $3,032 on each
citizen
estimated as having HIV/AIDS
Diabetes kills more Americans than AIDS and breast cancer combined, yet the
NIH spends only $42 on each diabetic
Alzheimer's Disease kills 3.3 times more than AIDS, yet the NIH
spends only $124 on each patient with Alzheimer's Disease
Parkinson's Disease death rate similar to AIDS yet the NIH
spends $92 on each patient
Prostate cancer kills 2 times more than AIDS,
yet the NIH spends only $171 on each patient with prostate disease
Hepatitis C (HCV) kills 12,000, yet the NIH spends
only $23 on each HCV patient
Hepatitis B (HBV) kills 5,000, yet the NIH spends only
$43 on each HBV
patient
The flu (influenza) on average, now kills almost
4+ times more
than AIDS.
Flu: $327 million AIDS: $2.3 Billion
COPD (Chronic Obstructive Pulmonary Dis.) =
over 126,000 deaths yet the NIH spends only
$7 on each patient
West Nile Virus
cases in 2009: 637 cases and 28 deaths, which results in
$1.5 million dollars spent in research per death.
Does these facts justify
this
disparity in bio-
medical research funding? Sudden Infant Death Syndrome (SIDS) estimated deaths
at 2,250. HIV/AIDS under 13 =
thirteen deaths.
2010 funding request for HIV/AIDS = 25.8 Billion: $15.6
Billion for care, cash & housing assistance (HOPWA)
for HIV patients & only .9 percent for prevention.
Total HIV/AIDS Funding since day one: $$ 330+
Billion dollars through 2010--over 1/3rd of a trillion dollars.
($150B thru 2004 from
Henry J Kaiser Foundation and over $20+ Billion every year since
then + Congress voted another $50 billion for global HIV, TB &
Malaria + a significant portion of the $7.4 billion in the Stimulus
Bill for the NIH Institutes will go to HIV because it is being
distributed in pro-rata fashion based on the pervious year's funding
when, as usual, HIV received 10 percent of the NIH budget.)
The infection rate for AIDS throughout the entire world is
1 percent or less
except in two countries, Sub-Saharan Africa and the Caribbean. See page 8
from UNAIDS
here (large file, please be patient). For a specific country,
click
here. For AIDS in India, where estimates were 100%
inflated until recently by
UNAIDS (The
Joint United Nations Programme on HIV/AIDS), click
here.
SARS: "Current Situation" from the
CDC states
"there is no known SARS transmission anywhere in the
world." Research monies not disclosed by NIH. Press
coverage: disproportionate.
Monkeypox cases confirmed in the USA:
37,
deaths =0 in 2003. No recent reporting is available from the
CDC.
Statistical supporting links may be viewed
here Color pie chart and graph illustrating disparities in funding may be
viewed here Updates on Funding for your Disease of Interest is
here.
Sixteen
diseases killed a million more American than HIV/AIDS
annually in 1999. There are more now. Please take a moment to view our 26-member
Board of
Directors of surgeons, medical directors, pharmacists,
dentists and disease advocates To review all FAIR Newsletters, click
here
We appreciate your submitting news stories of interest to us at
fair@dc.rr.com To view a powerful 14 minute video by the American Diabetes
Association and ABC Television,
Click HERE Every donation to FAIR counts! To make a gift in memory of a loved
one or friend, to honor someone or to leave a legacy with estate
planning, simply click
here.
To email a
template letter in support of fair funding
to President
Bush and your Congresspersons. Simply go
here to contact them quickly and easily
with a click,
copy and paste.
View the latest (2008) reported HIV/AIDS USA funding billions and the
amount for each state, most of which is for social programs,
housing assistance, cash payments, meds, etc.
Worldwide, the most deaths be far are from non-communicable
diseases: 16 million die of cardio-vascular disease, 7.3 million from cancer,
3.7 million from respiratory infections versus 3.1 million from
HIV, a communicable, STD
(sexually transmitted disease).
See world clock
here
and click on "Death" in the middle column.
World-wide there are 160 million people with hepatitis C
versus 34 million with HIV/AIDS.
To send a prepared letter to the President and your Congresspersons
in support of new organ donor policies to reverse USA's organ donor
crisis, click
here.
FAIR's Privacy Policy may be viewed
here.
FAIR is an acronym for Fair
Allocations
In Research.
FAIR is fair. |
Volume 8: Issue 2 |
FAIR NEWSLETTER: June 2010
|
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Elton John admits HIV "Not
Life-threatening Anymore"
In
an appearance on TV's American Idol Gives Back,
ironically to urge Americans to donate more money to
battle HIV, Elton John admitted that HIV is "not
life-threatening anymore." He did have good advice for
those who are at risk, which includes men having sex with
men, IV drug users and heterosexuals having sex with
people who have HIV or are at risk of having HIV.
Elton's advice: use condoms. Click on Elton to watch
a video of him saying these words.
U2's Bono makes the case for less
HIV
funding...2 pills, 40¢ = life
Rock
star Bono take's Elton's comments one step further by
revealing that HIV/AIDS patients only need to take two
pills a day; two pills that only cost 40 cents. Click
on Bono to hear him state this fact that begs the
question, "..then why our we spending $3.1 billion--10
percent of the entire bio-medical research budget--on
HIV/AIDS??"
Stunning California Success: AIDS
death rate
Plummets 99 percent, heading to zero
Diabetes deaths: 7,414
 The
California (CA) Department of Health Office of AIDS new reports state that in
1992, 9,802 patients who were diagnosed with AIDS died
that same year. In '09 the number of patients who were
diagnosed with AIDS and died in 2009
was 146 -a 99 percent rate decrease that
illustrates the phenomenal success California and our country have
achieved against HIV/AIDS. The overall total of CA HIV/AIDS
deaths is down from 8,007 to 899--an 89 percent decline. It’s
also noteworthy that some died from auto
accidents, assaults, suicide, etc.—the Office of AIDS
does not filter out those so the actual number who died
from AIDS is actually less.
Compare to that state's
7,414 deaths from diabetes.
A redesign of our web site adds a
powerful reception to visitors
After
greatly appreciated input from the newest member of our
Board of Directors, Cathy Teal, with her
25 years of experience in advertising and
marketing communications, we have redesigned our
website, adding new links in the top header, bottom
footer and have made
our Home page much more powerful. We invite you to
take
a peek.
Our CEO invites Holly Robinson Peete
and
Tim Gunn to be FAIR spokespersons
 Holly
Robinson Peete (L) was the runner-up on "The Apprentice"
and won over $600,000 for her charity,
Hollyrod Foundation, whose focus is autism, which
receives poor funding from the government for
bio-medical research. Tim Gunn is the TV personality on
Project Runway who partners with super-model
Heidi Klum to make the show a success. Our CEO, seen
here in a chance airport meeting with Mr. Gunn,
requested both celebrities be spokespersons for
FAIR--to Mrs. Peete
by email and personally to Mr. Gunn.
Diabetes drugs a cure for hepatitis
C?
It may be true.
As
opposed to the many, unfulfilled promises hepatitis C (HCV) patients have
heard for years that new drugs are on the horizon to cure
all patients, research
at the United Kingdom's University of Leeds has
indicated that the solution may actually come from a
lucky find that diabetes drugs can help cure hepatitis
C. Full story, click on the University's logo.
Our thanks to FAIR member Debbie Green for bringing this
to our attention. Debbie is CEO of the
Greenview Hepatitis C
Fund in Ann Arbor, MI.
FAIR communicates with GA Rep. Hank
Johnson regarding
his hepatitis C
Georgia
Congressional representative, Hank Johnson (D),
announced he has been battling the hepatitis C
virus.
We wrote to Rep. Johnson and offered our help and
educated him regarding the poor funding for HCV by the
NIH and Congress. We hope he will be proactive in seeing
that fair allocations are begun for, not just HCV, but
for all maladies not presently receiving them.
FAIR Joins with HepCop in petition
to remove HIV representative
Presently,
America's hepatitis C (HCV) patients are being
represented at the World Hepatitis Alliance (WHA) by a man,
Chris Taylor, who
works for an HIV/AIDS organization, NASTAD (National
Alliance of State and Territorial AIDS Directors)
whose Executive Committee is comprised
of 20 state AIDS directors, no HCV directors, and whose
focus is clearly HIV. Our CEO, who has HCV, joined with other
organizations in the group HepCop (Hepatitis C Oversight
Partnership) in a petition to have Taylor removed from
office and replaced with someone from an HCV
organization whose sole focus is HCV advocacy. If you
would like to join this petition click the "Time to Resign" logo.
Our CEO joined with other FAIR members in
communicating with the Founder of WHA to express our
displeasure and you may read those communications
here.
The
National Alliance of State and Territorial AIDS
Directors (NASTAD) responded by adding hepatitis to
their "Mission Statement." FAIR member and Founder of
the Massachusetts
Hepatitis Patient Empowerment Project (MaHepPEP)
appropriately asked that they also change their name to
reflect any serious efforts for hepatitis patients. Our
CEO pointed out in his communications to the WHA that this token gesture by NASTAD
was woefully inadequate and urged them to focus on more
research for hepatitis C (HCV) since HCV has been
killing more HIV/HCV co-infected patients than AIDS for
over a decade. Click on the NASTAD icon to read the
communications.
FAIR's CEO presents to the San
Mateo Medical Center's Physicians
Our
CEO, Dr. Darling, was honored to be invited and give our
FAIR presentation to the physicians at the annual San
Mateo Medical Center Staff meeting. Our thanks are
extended to the group and Dr. Ann Marie Silvestri, Dr.
Darling's classmate at the University of the Pacific
Dental School, who is the
Dental Program Manager at the San Mateo Medical Center
and who made this possible.
Major research study: financial
benefits to
donors would increase donation
With
just under 108,000 Americans now on waiting lists for
an organ - 85,379 of them for kidneys -
researchers at the University of
Pennsylvania and the Philadelphia VA Medical
Center have found that payments to living
donors and donor families by the US
government would draw
more participants without relying
disproportionately on poor people. The
“experts” on morals, the “medical ethicists”
disagree. Clearly, none of their loved ones
are dying in ICU’s today waiting for an
organ transplant. Click on the "More Good
News" logo for full story.
NY lawmaker wants FAIR’s recommended
organ donation policy as law

With the
organ-donor waiting list rising every day
and one of the present 106,000 dying every
hour, we have been promoting the new
organ-donor policy of Presumed Consent (PC)
for years. Now, New York Assemblyman Richard
Brodsky has introduced a PC bill into their
legislative. Kudos to Assemblyman Brodsky!
Full story, click on 108,000.
Illinois Fire Captain to
receive kidney
From stranger he met on the Internet

..and
now that stranger’s daughter will also be
giving a kidney to a complete stranger she
also met on the internet.
Full Story Matchingdonors.com
has over 8,100 people who have signed up to
donate a kidney. If you need a kidney
transplant you may wish to investigate this
well-established organization, the time you
spend there may save your life.
FAIR's Liver Disease &
Transplant Support
Group
Celebrates 9th Anniversary
Nine
years ago we founded the FAIR Foundation Liver Disease &
Transplant Support Group and with the assistance of
liver transplant recipient, Jack Burke, we have been
providing education, emotional support and
referral for transplant to patients locally in
Southern California and throughout the USA. Sadly, we
have lost many over the years—on average, 1 every 3
months—and this reinforces our resolve at the FAIR
Foundation to see
new organ-donor policies instituted to reverse the
organ-donor crisis in America by augmenting altruism
and providing more organs for those in need.
If you
need help, click on the logo and phone us.
FAIR's dental service enables Euclid,
Ohio patient to be listed for transplant
In order to be listed for transplant you
must have
dental clearance to insure no infection will spread
after you are transplanted and you receive immuno-suppressant
medications. Ron in Euclid, Ohio could not afford the
dental treatment so FAIR's dental outreach team at the
American College of Prosthodontists (ACP) reached out to
their ACP dentists who removed the problem areas. Indeed, as a
result of the pro-bono work of ACP dentist Dr Eric Fried, DDS,
Ron is now listed for transplant with the
Cleveland Clinic and waiting for his new heart.
Kudos to this fine dentist! If you cannot get on the
waiting list due to dental disease that you cannot
afford to have treated, see
this link to access the application to our dental
plan.
UAL offering free air travel for
certain transplant participants
United
Air lines has partnered with Transplant Recipients
International Organization (TRIO) to
provide transplant recipients, candidates, living donors and
care-givers cost-free air transport for anyone when
travel is transplant-related. For more information on
this laudable program, click on the TRIO logo.
2011 NIH funding for
each
disease now available
The
2011 estimated funding by the NIH is now
available and it shows Alzheimer's at $480
million, diabetes at $1.78 billion, breast
cancer $765 million, cardiovascular disease
at $ 2.1 billion, HIV/AIDS at $3.2 billion
and for over 6,000 rare illnesses only $467
million, down from $1.2 billion in 2006.
Stimulus bill funding
for
each disease now reported

The stimulus bill (American
Recovery & Reinvestment Act ARRA) has
resulted in the NIH spending additional
research funds on most diseases--how much on
your disease of interest? Click
here and see "2010 Estimated ARRA."
Is this FAIR? We don't
think so either.
Our Government's
Bio-Medical Research Allocations
by the NIH and Congress

and for over 6,000 rare illnesses only $467
million, down from $1.2 billion in 2006.
2011 Funding announced:
-
HIV/AIDS increased $210 million
-
Cardiovascular disease decreased $200
million
-
COPD
raised $11 million
-
Diabetes raised $26 million
-
Parkinson's raised $5 million
-
Alzheimer's 2009 figure today is $200
million less than what has been reported
previously
-
Overall cancer funding up $500 million
-
Breast
cancer funding up $24 million
FAIR adds Links
page--let us know if you
want your organization included
We have added a page on which we are posting
links to other organizations. If you would
like your a link to your organization added
here, just let us know at our email
address:
fair@dc.rr.com.
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State Map to Donate Life Registry to become
an organ donor. 1 donor can save 8 lives!
|
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Newsworthy
Headlines?
·
Central NY Real Time News: The Rev.
Chauncey Brown, chairman of the Black
Leadership Commission on AIDS in Onondaga,
County, New York (population of
452,000 includes Syracuse, NY), called
the local spike in HIV cases "shocking."
What was the number? Perhaps one or two
thousand? Nine in four months.
· FAIR
to the
Economist
magazine:
your article on HIV/AIDS misleads as to the
number of infections and causes undo alarm.
Please publish a correction with the facts
we provide.
|
Exactly who is receiving HIV
research dollars?
Are they all in the USA? You'll be surprised

Where is the $3.184 billion in HIV research being spent
and who is receiving the exorbitant funding? Click on
the hands reaching out for the cash.
Do you
auction items on E-bay?
If
you sell an item on E-bay and participate in their
program to benefit non-profit organizations and you
would like to include FAIR in your philanthropy, you can
easily donate a percentage of your revenue received to
FAIR--as little or large a percent as you wish to
donate. To learn how, click on the E-bay logo and we
thank you! To see an auction that is donating to FAIR,
click
here.
FAIR's Board of Directors at work
In our continuing "get acquainted with
the Board" series,
we are
honored to profile the following Board
members.

Charles J.
Goodacre, DDS, MSD, Dean,
Loma Linda University
School of
Dentistry, is the
recipient of a 2008 American Dental
Education Association Gies Award.
The award is one of eight inaugural
William J. Gies Awards for Vision,
Innovation, and Achievement, and
recognizes outstanding innovation by a
dental educator. Dr. Goodacre has also been chosen as President of the
American College of Prosthodontists
and is a Past President of the American
Board of Prosthodontics and an Executive
Council Member of the Academy of
Prosthodontics.
Web CV
Ray
Hill
was named Houston’s
Most Prominent GLBT
Male Activist
by Outsmart Magazine at their annual
awards banquet. Ray, who was also first
runner up in the "Male Hero" Category,
is a past recipient of the ACLU Lifetime
Achievement Award for advancing the
rights of gay, lesbian and transgender
citizens (GLBT), used to be one of
America’s most strident AIDS activists.
While
still helping those with HIV/AIDS, Ray
has switched his focus now to calling
for fairer funding for non-AIDS
illnesses, including hepatitis C and
diabetes, the latter having caused
amputation of his feet.

Donald Hillebrand;
Medical Director, Liver Transplantation,
Scripps Green Hospital, La Jolla,
California
Web CV

From the Aloha
state of Hawaii, Norman Kay is our
patient advocate for Americans with
prostate cancer. Norman battled prostate
cancer successfully however that has not
stopped him from advocating on behalf of
the 1.9 million who have this illness,
27,050 of whom perished.
|
FAIR Continues its
dental plan for transplant patients
If
you have passed all of your pre-transplant requirements
except for dental due to financial hardship, contact us
and we will attempt to find a dentist that will help you
pro-bono. We have helped many patients in the past and
may be able to assist you also. For a complete summary
of our dental plan for transplant patients, click the
smile and download the information if you are in need of
help.
FAIR Profiles States
 What
are the top ten causes of death for the citizens of
Colorado and
Delaware as reported
by the Centers for Disease Control and Prevention (CDC)?
Is HIV/AIDS one of them? If not, how do the top ten
compare with HIV? For the top ten causes of death in
these states and other interesting info,
click on their map. For HIV/AIDS deaths in those and all
other states, click
here.
Your Disease's research
dollars--where are they going?
Have
you wondered where the money being spent on your disease
is actually going--to what researcher in what country?
Click
here, find your illness, then click on the budgeted
amount to get the full list of people researching your
illness.
|

and it still
receives 10 percent of the entire research
budget
-
The Global Fund to Fight
AIDS, Tuberculosis and Malaria
reports dramatic progress with 4,000
fewer deaths every day. They have
dispersed $10 billion and now want $20
billion more.
-
It comes as no
surprise that
another $1.84 Billion has been
awarded in grants For HIV/AIDS Care and Medications by Health
and Human Services in addition to the
$15.6 billion already allocated for
2010. Seventy-five percent
of Part A, B and C funds must be spent
on "core medical services," which
include outpatient health services, drug
assistance, health insurance payments
and medical nutrition therapy. The
remaining 25 percent pays for support
services that help people living with
HIV/AIDS achieve desired medical
outcomes. These services include but are
not limited to respite care, medical
transportation and linguistic services.
-
With a goal of creating jobs and
enhancing chronic disease studies, the
federal government is
awarding a $9.7 million grant of
stimulus funds to the Los Angeles
Biomedical Research Institute (LA BioMed)
for the construction of a new Chronic
Disease Clinical Research Center on its
campus. Part of the research will go
towards HIV/AIDS.
-
Medical News Today: Novel stem
cell gene therapy that has long-lasting
effects against HIV even after a single
treatment.
-
San Francisco officials
and state legislators
recognized the accomplishments of Dr.
Gero Huetter, the German doctor who
made headlines in 2007 when his team
achieved the first functional cure for
HIV.
The
States continue great success against
HIV/AIDS

What percent
decline in AIDS deaths have been achieved in America's
states? Illinois
↓93, Kentucky↓98,
Minnesota
↓90, Oklahoma
↓97, Alaska
↓84, Connecticut↓91,
Hawaii↓93, Pennsylvania
↓98, W. Virginia
↓92 and so on throughout the USA
reflecting the excellent success of HIV drugs,
prevention education and harm reduction policies
(providing clean syringes to IV drug users). Click
the map to see all states and their progress.
|
FAIR's Press Release:
Immediate Action Needed to Reverse America's
Organ-Donor Crisis
Every
hour a person on the waiting list or one
who was delisted due to becoming too sick to
be transplanted dies. You can help give all
in need the "Gift of Life" by simply copying
this opinion editorial and sending it to media
and President Obama. Click on the Please Help logo!
Waiting
for a Liver Transplant?
Are
you waiting for a liver transplant?
Which areas/hospitals are transplanting
years sooner than others. To calculate
your MELD score and find the region/state
that is transplanting at the lowest MELD
score, click the liver.
The HIV/AIDS
Clinical Trials
Parade Continues
In May there
were
1,742
HIV/AIDS Clinical Trials, in August, 1,865, in October
2,233, As of 6/11/10 there are 4,361
listed for HIV and 4,620 for
AIDS. Find out how many for your disease
by clicking
here. For example, there are a total of only
801 for Alzheimer's
Disease, 1012 for COPD, and 858 for hepatitis C (many
involving HIV & HCV).
World news reports for
HIV like no other illness
What kind of attention does HIV get in the
media. Well, we know it preoccupies much of
the media health focus as evidenced by
these
numerous articles, indeed, hundreds of HIV news from one source alone since our last
newsletter.
FAIR Members' Soapbox Alerts continue
...this
month to those suffering from our diabetes and also for
those suffering from both diabetes and cardiovascular disease. To easily send an alert
today to
President Obama, VP Biden, your Senators and
Representatives in support of fairer funding for this
illness, click the Soapbox logo!
Focus Disease of the Month:
Hepatitis C (HCV)
Hepatitis C is deadly: AIDS activists and physicians
have admitted for years that more patients infected
with HCV and HIV/AIDS
are dying from liver failure with HCV as a
causative factor than they are of the opportunistic
infections that used to kill them. Estimated HCV deaths
are now equal to that for HIV/AIDS in the USA.
Hepatitis C is serious:
HCV is the number one cause of liver transplant and there
is no vaccine to prevent it. Symptoms of advanced
liver disease from HCV include throwing up blood, severe
confusion, ascites, poor clotting, yellow coloring
(jaundice), cramps, low cholesterol, kidney failure and
diabetes, itching (pruritis, muscle wasting (cachexia),
osteoporosis, pain, loss of sex drive, sodium and
potassium imbalances, skin pathology, light stools, dark
urine, loss of appetite, severe fatigue, insomnia,
abnormal variations in blood pressure, swollen legs, and
low bile output.
Long-term effects of hepatitis C?
If you are notified by your MD that you are infected
with HCV do not panic. Out of 100 people so notified,
only 5–20 people will go on to develop cirrhosis over a
period of 20–30 years and the low incidence of 1–5
people will die from cirrhosis or liver cancer.
Is it possible to be cured of HCV?
Approximately 15%–25% of people who get Hepatitis C
will clear the virus from their bodies without treatment
and will not develop chronic infection. Experts do not
fully understand why this happens for some
people. Others may have to take the treatment for HCV.
Treatment for HCV:
Alpha interferon with Ribavirin are used as a
combination therapy to treat HCV. On average, it is only
effective in 50 percent of patients.
Should I take the treatment,
which usually has
severe side effects. Some urge all who are diagnosed
with HCV to take the treatment. Others recommend that a
patient have testing first to determine if there has
been any damage to the liver (scarring AKA fibrosis).
Such tests are an
invasive liver biopsy or a simple
blood test. If a patient has likely had HCV for many
decades and such testing shows no damage, the patient
may choose to forgo the difficult treatment.
Vaccination and HCV? No, there
is no vaccine for HCV. There is a vaccine for hepatitis
A and hepatitis B--two different viruses.
Hepatitis C is growing: The
CDC estimates 1.8 per cent of the population is
infected with HCV. September 1st population =
309,100,919
X 1.8 per cent = 5.5
million Americans estimated as having HCV.
Compare to 950,000 - 1,000,000 estimated to be living
with HIV/AIDS.
Hepatitis C is spread by blood to blood contact...as
in when blood from a person infected with the
Hepatitis C virus enters the body of someone who is not
infected. Today, most people become infected with the
Hepatitis C virus by sharing needles or other equipment
to inject drugs. You can also be infected by using your
partner's toothbrush if you both have bleeding gums and
also by sharing razor blades if you accidentally cut
yourselves. HCV can also be spread by improper sanitary
procedures involved in tattooing and body piercing.
Hepatitis C and sex??
Hepatitis C is rarely spread by sexual contact because
blood to blood transmission is required. HCV is not
spread by semen. It is not categorized as a sexually
transmitted disease.
Fact.
Hepatitis C is not spread..by
sharing eating utensils, breastfeeding, hugging,
kissing, holding hands, coughing, or sneezing. It is
also not spread through food or water.
Hepatitis C and pregnancy:
Hepatitis C is rarely passed from a pregnant woman to
her baby. About 4 of every 100 infants born to mothers
with Hepatitis C become infected with the virus.
However, the risk becomes greater if the mother has both
HIV infection and Hepatitis C.
Can a HCV patient be an organ
donor? Yes, organs for HCV patients are routinely
used on dying patients who also have HCV. They are not
used in patients without HCV unless the ill patients
consents to receiving an HCV infected organ. The CDC
incorrectly states on their website that a HCV patient
cannot be an organ donor. We wrote the CDC director in
2008 and the new director in
2009 and asked them to correct this gross error and
they have refused to do so. By doing so they are causing
some to not donate organs who would qualify and by
improperly reporting this on the CDC website, some on
the waiting list may die.
Hispanics:
Latinos have more than a 40 percent greater chance of
being infected with hepatitis C than the general
population (Latino
Organization for Liver Awareness).
African-Americans: Black Americans are the most severely affected race due to their
predominately having the strain (genotype 1) that is
most resistant to treatment.
Statistics and information, unless
otherwise noted, is from the Centers for Disease Control
and Prevention hepatitis C site (CDC).
Hepatitis C and all other diseases except
HIV/AIDS would receive significantly larger research
allocations under The FAIR Foundation's
recommended
policies.
Fairness?
The NIH is spending only $23
on each patient with HCV in research versus
$3,032 on each AIDS
patient. This has resulted in
5 drugs for HCV and
79 new HIV AIDS drugs with 82 already approved.
Please
forward this newsletter to your friends and consider FAIR this year for
your tax-deductible contributions...
As
you consider your year-end tax-deductible donations, we
would be most grateful for your financial support.
Please help us benefit all who need fair and equitable
research allocations for their disease of interest and to
achieve new organ-donor policies to reverse the organ-donor
crisis in America. Indeed, we are the only nonprofit
organization solely dedicated to fairness in research funding
and we respectfully ask for your help in funding our effort.
Remember, we have no paid employees. Indeed; we are all
volunteers so every dollar of your donation will go to
continuing our
educating Congress and the NIH on the need for change to
insure fair funding for your disease of interest. Please
make your donation on our secure website or mail a check made out to the FAIR
Foundation at 78-629 Bougainvillea Drive, Palm Desert, CA 92211. Thank
you in advance for your generosity!
The FAIR Foundation;
E-mail fair@dc.rr.com
FAIR is an apolitical 501 (c)(3) organization.
FAIR Mission Statement:
The FAIR Foundation is
dedicated to fair and equitable distribution of
research funds by the government for all diseases, including the 16
that kill a million more Americans than AIDS. A disease’s mortality rate
shall be given emphasis in determining allocations and other
secondary factors shall be utilized to insure diseases
that cause great suffering but have low mortality rates will
also receive significantly increased funding.
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