The FAIR Foundation is dedicated to fair and equitable distributions of Nation Institutes of Health (NIH) research funds for all diseases, including the sixteen that kill more Americans than AIDS.

Points of Interest on NIH Research Allocations as of 09/15/10

The CDC estimates 14,110 AIDS deaths in 2007 in the USA. To see the answer and the number of deaths in your state, click here. Note: we asked each state how many HIV/AIDS deaths they have; their answer: 10,111.

Cardiovascular Disease kills 864,000 every year, yet receives over 1/2 Billion less than AIDS with $26 spent on behalf of each CVD patient

The NIH is spending $3,032 on each citizen estimated as having HIV/AIDS

Diabetes kills more Americans than AIDS and breast cancer combined, yet the NIH spends only $42 on each diabetic

Alzheimer's Disease kills 3.3 times more than AIDS, yet the NIH spends only $124 on each patient with Alzheimer's Disease

Parkinson's Disease death rate similar to AIDS yet the NIH spends $92 on each patient

Prostate cancer kills 2 times more than AIDS, yet the NIH spends only $171 on each patient with prostate disease

Hepatitis C (HCV) kills 12,000, yet the NIH spends only $23 on each HCV patient

Hepatitis B (HBV) kills 5,000, yet the NIH spends only $43 on each HBV patient

The flu (influenza) on average, now kills almost 4+ times more than AIDS. Flu: $327 million
AIDS: $2.3 Billion

COPD (Chronic Obstructive Pulmonary Dis.) = over 126,000 deaths yet the NIH spends only $7 on each patient

West Nile Virus cases in 2009: 637 cases and 28 deaths, which results in $1.5 million dollars spent in research per death. Does these facts justify this disparity in bio- medical research funding?

Sudden Infant Death Syndrome (SIDS) estimated deaths at 2,250. HIV/AIDS under 13 = thirteen deaths.

2010 funding request for HIV/AIDS = 25.8 Billion: $15.6 Billion for care, cash & housing assistance (HOPWA) for HIV patients & only .9 percent for prevention.

Total HIV/AIDS Funding since day one: $$ 330⁺ Billion dollars through 2010--over 1/3rd of a trillion dollars. ($150B thru 2004 from Henry J Kaiser Foundation and over $20+ Billion every year since then + Congress voted another $50 billion for global HIV, TB & Malaria + a significant portion of the $7.4 billion in the Stimulus Bill for the NIH Institutes will go to HIV because it is being distributed in pro-rata fashion based on the pervious year's funding when, as usual, HIV received 10 percent of the NIH budget.)

The infection rate for AIDS throughout the entire world is 1 percent or less except in two countries, Sub-Saharan Africa and the Caribbean. See page 8 from UNAIDS here (large file, please be patient). For a specific country, click here.

For AIDS in India, where estimates were 100% inflated until recently by UNAIDS (The Joint United Nations Programme on HIV/AIDS), click here.

SARS: "Current Situation" from the CDC states "there is no known SARS transmission anywhere in the world." Research monies not disclosed by NIH. Press coverage: disproportionate.

Monkeypox cases confirmed in the USA: 37, deaths =0 in 2003. No recent reporting is available from the CDC.

Statistical supporting links may be viewed here

Color pie chart and graph illustrating disparities in funding may be viewed here

Updates on Funding for your Disease of Interest is here.

Sixteen diseases killed a million more American than HIV/AIDS annually in 1999. There are more now.

Please take a moment to view our 26-member Board of Directors of surgeons, medical directors, pharmacists, dentists and disease advocates

To review all FAIR Newsletters, click here

We appreciate your submitting news stories of interest to us at fair@dc.rr.com

To view a powerful 14 minute video by the American Diabetes Association and ABC Television, Click HERE

Every donation to FAIR counts! To make a gift in memory of a loved one or friend, to honor someone or to leave a legacy with estate planning, simply click here.

To email a template letter in support of fair funding to President Bush and your Congresspersons. Simply go here to contact them quickly and easily with a click, copy and paste.

View the latest (2008) reported HIV/AIDS USA funding billions and the amount for each state, most of which is for social programs, housing assistance, cash payments, meds, etc.

Worldwide, the most deaths be far are from non-communicable diseases: 16 million die of cardio-vascular disease, 7.3 million from cancer, 3.7 million from respiratory infections versus 3.1 million from HIV, a communicable, STD
(sexually transmitted disease). See world clock here and click on "Death" in the middle column.

World-wide there are 160 million people with hepatitis C versus 34 million with HIV/AIDS.

To send a prepared letter to the President and your Congresspersons in support of new organ donor policies to reverse USA's organ donor crisis, click here.

FAIR's Privacy Policy may be viewed here.

FAIR is an acronym for Fair Allocations In Research.

FAIR is fair.

Volume 8: Issue 3

FAIR NEWSLETTER: Sept 2010

Outrage #1: you're a donor, you get $0.
Organ donor CEO got $$487,225 &
companies get $200 million in profit

Yes, if you donate tissues or organs you receive $0, that's right, no financial reimbursement for yourself if you are a living donor or for your family (burial expenses, etc.) if you are a deceased donor. Yet the Chief Executive Officer of just one NON-PROFIT organ procurement organization (there are 58 that oversee our government's organ donor retrievals and distributions) received total compensation of $487,225 in 2007 (their latest Form 990 reported online). In addition, companies that receive your tissues expect $200 million of profit by 2012.

Outrage #2...if your tissues are patented by for-profit companies, you get ....

Yes, if your tissues lead to major discoveries and sales for the companies who receive them, you have no patent rights to your own tissues and genes (as reported on 60 Minutes). These two outrages illustrate the unethical and immoral aspect of the organ-donor system in the USA that allows everyone involved in the donation to financially benefit from one's organs and tissues except the living donor and/or the deceased donor's family who authorize the donation.

Outrage #3... 34-year old liver donor with
3 children, ages 1, 4 & 6, dies after surgery

Because our government will not adopt new organ-donor policies to insure that more organs are available, surgeons are having to perform severe surgery to take a portion of a liver from a completely healthy person--a violation of the Hippocratic oath--and use it in an attempt to save the life of a sick patient. This is called living donor liver transplant (LDLT). A Colorado hospital recently suspended LDLT's while it investigates the death of a South Dakota man who donated part of his liver to his brother. The donor.... was only 34 and had three children ages 1, 4 and 6--an outrage caused by our government's stubborn refusal to even test new organ-donor policies. With three young children, this common sense would require that this man's life not be put in jeopardy with LDLT.

The Severe LDLT Surgery--Stop it!

What exactly is this living donor liver transplant surgery that killed the young adult donor in the above article and has killed three other completely healthy persons who tried to donate a portion of their liver? You can watch it yourself but caution, this video is very graphic and clearly shows the outrage of our government perpetuating an organ-donor system that requires such extreme actions by well-intentioned surgeons in an attempt to save lives. Graphic video

Organ-donor system rejects new policies,
Opts for "Organ Preservation Vehicle"

In a clear sign of the need for new organ-donor policies, Manhattan has formed a ghoulish "organ preservation vehicle" to swoop in as soon as a person was declared dead after an accident or murder to retrieve the organs. Instead of resorting to such extremes, those in charge of our OD system simply need to admit the present system is failing miserably in meeting the demand with one waiting list history patient dying every hour, think "outside the box" and perform trial projects of the policies we recommend.

Outrage #4... Transplants to be disallowed in AZ for HCV and many other sick patients

In a shocking display of discriminatory "rationing of care" against many of their legal citizens, including all with hepatitis C, the State of Arizona's state funded Medicare program is ceasing funding for many transplant patients listed here as of 10/01/10 to ease their budget problems. The denials are expected to save $4 million dollars, yet at the same time the State spends $2.7 billion on illegal immigrants including $694.8 million for their health care services, [including transplant], $1.6 billion for education, $339.7 million in law enforcement and court costs, $85.5 million in welfare costs and $155.4 million in other general costs. We urge immediate action by all patients and organizations representing the diseases that are losing their funding to protest this State policy because if this is allowed, it will spread to other states soon. Such rationing of care will not only lead to many deaths, but it is likely some transplant centers will have to close their doors, leading to even more deaths.

Unfair Favoritism for Breast cancer
highlighted by Parade Magazine

It is unusual to see the disproportionate bias in funding for breast cancer discussed by the media. Parade magazine's article "Cancer Funding Doesn't Add Up" courageously discusses this issue and how it negatively impacts other cancer patients like those with colo-rectal cancer which kills 25 percent more Americans than breast cancer but receives only $297 million compared to $765 million for breast cancer. Our thanks to FAIR member Pam Sienkiewicz for bringing this article to our attention.

Is this FAIR? We don't think so either.
Our Government's Bio-Medical Research Allocations
by the NIH and Congress

and for over 6,000 rare illnesses only $467 million, down from $1.2 billion in 2006.

HIV Infections in Africa Plummet 25 Percent

HIV/AIDS continues its descent as a global threat. Not only have deaths plummeted in the USA as seen in the 99 percent drop in California's death rate in newly infected patients from almost 10,000 in 1994 to 146 last year, but now the BBC reports the great success in Africa with infections falling dramatically--25 percent.

Obama Requests More Money For HIV/AIDS, Other Health Programs

President Obama updated his pending fiscal year 2011 Health and Human Services budget request to include $400 million more for HIV/AIDS programs, high-risk insurance pools and health worker training, CQ HealthBeat reports. He made the request to House Speaker Nancy Pelosi (D-CA.). Overall funding bias for HIV by our government (not including Bill Gates, States, pharma, Hollywood stars, etc.) is now well over one-third of a Trillion dollars (see facts in left column).

Powerful Comments on HIV disparity
by health policy expert Philip Stevens

Philip Stevens (seen at left), a health policy expert at International Policy Network, a London-based think tank, didn't hold anything back in regards to the inappropriate HIV funding. In an article that pointed out global HIV infections have been plummeting, Stevens said that while some recent AIDS investments …have clearly saved lives, it also has distorted health spending. Despite only causing 4 percent of deaths, AIDS gets about 20 cents of every public health dollar. "The same amount of money that we spend on AIDS could save many, many more lives more cheaply by vaccinating children or distributing cheap treatments for diarrhea," he said. "Aid agencies have a responsibility to ensure they save the most lives possible with the amount of money they have available," he said. "Spending the lion's share on HIV clearly does not do that." Our thanks to FAIR Board member, Alzheimer's and Eldercare awareness and reform advocate, Jacqueline Marcell, for bringing this story to our attention.

Our CEO invites Michael Fox to be FAIR's
national spokesperson to begin the debate

Our CEO, Dr. Darling, has invited Michael Fox, Founder of the Michael J. Fox Foundation for Parkinson's Disease Research, to be a spokesperson for FAIR and to speak out on the poor funding for Fox's illness, Parkinson's Disease (PD). Seen here testifying before Congress (click Michael for video) and asking for more PD research funds, Fox's efforts were unsuccessful as our government is only spending $171 per patient on PD in research relative to the exorbitant amount of $3,032 on behalf of each HIV/AIDS patient. At the bottom of this newsletter, we profile PD and another of America's most passionate PD advocates, Jo Rosen of the Parkinson's Resource Organization.

FAIR's CEO requests resignation
of NVHR Director

As a hepatitis C (HCV) patient, our CEO, Dr. Darling, has joined with many other FAIR members and USA patients in being very frustrated by the actions of the National Virus Hepatitis Roundtable (NVHR). The NVHR has very few with HCV or HCV as their primary focus in the organization and the NVHR Director, Martha Saly, has refused efforts to institute changes to insure more fair and equitable NIH Bio-medical research funding for HCV and HBV with some of those funds coming from the exorbitant funding that now exists for HIV. Because of her reluctance to act on this issue and the fact that Ms. Saly's bio states that she is “in partnership with the National Alliance of State and Territorial AIDS Directors (NASTAD)" Dr. Darling pointed out this conflict of interest and respectfully requested her resignation. He also asked that she recommend to the NVHR that the NVHR have a person with hepatitis, or one whose sole focus is hepatitis, as their Director.

A Message from Transplant Recipients
International Organization

Nine years ago we founded the FAIR Foundation Liver Disease & Transplant Support Group and with the assistance of liver transplant recipient, Jack Burke, we have been providing education, emotional support and referral for transplant to patients locally in Southern California and throughout the USA. Sadly, we have lost many over the years—on average, 1 every 3 months—and this reinforces our resolve at the FAIR Foundation to see new organ-donor policies instituted to reverse the organ-donor crisis in America by augmenting altruism and providing more organs for those in need. If you need help, click on the logo and phone us.

State Map to Donate Life Registry to become an organ donor. 1 donor can save 8 lives!

Newsworthy Headlines?

· A particularly disgusting news story headline, "Was Jesus Christ HIV Positive," discusses Pastor Xola Skosana's sermon entitled "Jesus was HIV positive." This pastor's way of preaching has been respected by AIDS campaigners in South Africa; however it is not conducive to constructive efforts to build coalitions and funding in battling global HIV infections.

· From IRIN Plus headline news for a lake in Uganda: "New strains of HIV spreading in fishing communities." The number infected is not 1,000 or 2,500, it is the small number of 117. Fishing communities??

Exactly who is receiving HIV research dollars?
Are they all in the USA? You'll be surprised

Where is the $3.184 billion in HIV research being spent and who is receiving the exorbitant funding? Click on the hands reaching out for the cash.

FAIR's Board of Directors at work
In our continuing "get acquainted with the Board" series,
we are honored to profile the following Board members.

Jacqueline Marcell is our Advocate for Alzheimer’s & Caregiving. She’s a former television executive who cared for parents with undiagnosed Alzheimer’s. Jacqueline's passion to help others resulted in her book Elder Rage, the Coping with Caregiving radio show, and becoming an International Speaker. Jacqueline shares knowledge on issues that unnecessarily cost a year of her life, her parents’ life savings and most of her own--and then nearly her life itself when she survived breast cancer. Read her advocacy letter to talk show personality, Dr. Dean Edell: Advocacy for FAIR: Alzheimer's

Melba R. Moore, MS, Commissioner of Health, St. Louis, Missouri Department of Health, has added to her laudable accomplishments by becoming certified as a Public Health Administrator. Ms. Moore is a member of the Webster Univ. Arts and Sciences Advisory Board, St. Louis Connect Care, the Regional Health Commission and the John F. Kennedy School of Government for State and Local Executives. Ms. Moore has over 20 years experience in the public sector with management and executive leadership.

Dr. Leonard J. Morse recently retired as Commissioner of Public Health, Worcester, Mass. He is Professor of Clinical Medicine and Family Medicine and Community Health at the Univ. of Mass. Medical School. Dr. Morse is Chair Emeritus of the AMA’s Council on Ethical and Judicial Affairs and Past-President of the Massachusetts Medical Society. Previously, Dr. Morse received the AMA's "Pride in the Profession" award for exemplary work in underserved areas and exceptional volunteerism, and the Red Ribbon Public/Health Award from AIDS Project Worcester. Because of Dr. Morse's influence and impact, AIDS Project Worcester announced that from this time forward the award will be named the "Dr. Leonard Morse Award."

Okechukwu N. Ojogho, MD, FACS, is the Surgical & Program Director of the kidney transplant program at Providence Sacred Heart Medical Center & Children's Hospital in Spokane, Washington. Dr. Ojogho was previously the Director of the Loma Linda University Medical Center Transplant Institute.

Thomas G. Peters, MD, FACS, FASN is Director of the Shands Jacksonville Transplant Center; Chief, Transplant Service Shands Jacksonville Medical Center, (formerly Methodist Medical Center) and Professor of Surgery, University of Florida College of Medicine, Health Sciences Center Jacksonville. You may read a brief bio on Dr. Peters by clicking on his picture. Dr. Peters's Shands Internet CV listing is here.

2011 NIH funding for each
disease now available

The 2011 estimated funding by the NIH is available and it shows Parkinson's disease at $171 million (a $37 million decrease since 2006), Alzheimer's at $480 million, diabetes at $1.78 billion, breast cancer $765 million, cardiovascular disease at $ 2.1 billion, HIV/AIDS at $3.2 billion and for over 6,000 rare illnesses only $467 million, down from $1.2 billion in 2006.

Stimulus bill funding for
each disease now reported

The stimulus bill (American Recovery & Reinvestment Act ARRA) has resulted in the NIH spending additional research funds on most diseases--how much on your disease of interest? Click here and see "2010 Estimated ARRA."

FAIR adds Links page--do you
want your organization included

We have added a page on which we are posting links to other organizations. If you would like a link to your organization added here, just let us know at our email address: fair@dc.rr.com.

FAIR Continues its dental plan for transplant patients

If you have passed all of your pre-transplant requirements except for dental due to financial hardship, contact us and we will attempt to find a dentist that will help you pro-bono. We have helped many patients in the past and may be able to assist you also. For a complete summary of our dental plan for transplant patients, click the smile and download the information if you are in need of help.

FAIR Profiles States

What are the top ten causes of death for the citizens of Georgia and Idaho as reported by the Centers for Disease Control and Prevention (CDC)? Is HIV/AIDS one of them? If not, how do the top ten compare with HIV? For the top ten causes of death in these states and other interesting info, click on their map. For HIV/AIDS deaths in those and all other states, click here.

Your Disease's research dollars--where are they going?

Have you wondered where the money being spent on your disease is actually going--to what researcher in what country? Click here, find your illness, then click on the budgeted amount to get the full list of people researching your illness.

and it still receives 10 percent of the entire research budget

AIDS vaccine breakthrough: Scientists find antibodies that kill 91% of HIV virus strains. Our thanks to FAIR member and nurse, Silvia Hinojosa Price, RN, for bringing this to our attention.
As reported by WebMD, a current research study shows HIV diagnoses dropped by more than half since the introduction of highly active antiretroviral therapy (HAART) for HIV-infected patients
The Centers for Medicare & Medicaid Services (CMS) has updated Medicare coverage to include expanded coverage for human immunodeficiency virus (HIV) screening for all Medicare members effective January 1, 2010. See notice from Blue Cross
The number of young people infected with HIV in Africa is falling in 16 of the 25 countries hardest hit by the virus, according to a new report by a U.N. agency.

The States continue great success against HIV/AIDS

What percent decline in AIDS deaths have been achieved in America's states? Illinois ↓93, Kentucky↓98, Minnesota ↓90, Oklahoma ↓97, Alaska ↓84, Connecticut↓91, Hawaii↓93, Pennsylvania ↓98, W. Virginia ↓92 and so on throughout the USA reflecting the excellent success of HIV drugs, prevention education and harm reduction policies (providing clean syringes to IV drug users). Click the map to see all states and their progress.

FAIR's Press Release: Immediate Action Needed to Reverse America's Organ-Donor Crisis

Every hour a person on the waiting list or one who was delisted due to becoming too sick to be transplanted dies. You can help give all in need the "Gift of Life" by simply copying this opinion editorial and sending it to media and President Obama. Click on the Please Help logo!

Waiting for a Liver Transplant?

Are you waiting for a liver transplant? Which areas/hospitals are transplanting years sooner than others. To calculate your MELD score and find the region/state that is transplanting at the lowest MELD score, click the liver.

The HIV/AIDS Clinical Trials
Parade Continues

In May there were 1,742 HIV/AIDS Clinical Trials, in August, 1,865, in October 2,233, As of 9/05/10 there are 4,473 listed for HIV and 4,746 for AIDS. Find out how many for your disease by clicking here. For example, there are a total of only 738 for Parkinson's Disease, 819 for Alzheimer's Disease, 1067 for COPD, and 997 for hepatitis C (many involving HIV & HCV).

FAIR Members' Soapbox Alerts continue

...this month to those suffering from our Focus illness at the bottom of this page, Parkinson's Disease. To easily send an alert today to President Obama, VP Biden, your Senators and Representatives in support of fairer funding for this illness, click the Soapbox logo!

Do you auction items on E-bay?

If you sell an item on E-bay and participate in their program to benefit non-profit organizations and you would like to include FAIR in your philanthropy, you can easily donate a percentage of your revenue received to FAIR--as little or large a percent as you wish to donate. To learn how, click on the E-bay logo and we thank you! To see an auction that is donating to FAIR, click here.

Our Focus this month:
Parkinson's disease (PD) and we...

are pleased to salute and profile FAIR member and an amazing PD advocate, Jo Rosen.
“It’s not going to get any better,” Alan Rosen warned his fiancée, Jo, after his 1989 diagnosis with Parkinson’s disease (PD). Jo knew what they faced; she had cared for her Parkinsonian mother. Jo chose to marry Alan and she made a pact with God that if God would teach her everything she could about Parkinson's, Jo would share it with the world; thus sprung the organization Children of Parkinsonians, later to become Parkinson's Resource Organization (PRO), as it is known today. For the past twenty years, Jo has been an unrelenting advocate for PD patients and their caregivers, devoting her life to helping families affected by Parkinson’s create a quality of life filled with dignity and self-respect. A compassionate and perceptive caregiver herself, Jo has touched the lives of countless individuals through PRO by offering nurturing and educational support programs, publishing a monthly newsletter that goes to thousands world-wide, providing invaluable and up-to-date information and referral services, arranging respite care for family caregivers, and promoting advocacy and public awareness. Jo’s dedication and commitment to no one being isolated because of Parkinson’s has given thousands of PD patients and their families the hope, inspiration, and strength they need to tackle Parkinson’s with courage and conviction, knowing that they are never alone. PRO now offers support groups in 12 communities and, yes, Jo is still leading the organization to fulfill its mission.
Parkinson's disease is a brain disorder. It occurs when certain nerve cells (neurons) in the brain die or become impaired. Normally, these cells produce a vital chemical known as dopamine. Dopamine allows smooth, coordinated function of muscles and movement. When approximately 80 percent of the dopamine-producing cells are damaged, the symptoms of PD appear. PD is not contagious. The AMA has concluded that genetics play a role in the development of PD.
PD is common: There are more than 1 million Americans who live with Parkinson’s disease, with 60,000 new cases diagnosed each year. Compare to AIDS: AIDS sufferers total approximately 1,050,000 with estimates of 46,000 new infections per year.
Parkinson's disease causes great suffering: Symptoms generally include tremor, muscle stiffness or rigidity, slowness of movement (called ‘bradykinesia’), and loss of balance. While medication masks some symptoms for a limited period, generally four to eight years, dose-limiting side-effects do occur after time. Eventually the medications lose their effectiveness, leaving the victim unable to move, speak or swallow.
Caregivers.... are Angels to the ill. They make it possible to live with dignity while ill.
Parkinson's disease treatment: Leading scientists describe Parkinson's as the “most curable” brain disorder. They hope for truly effective therapy and/or cure within this decade. A unique treatment that has proven successful in some patients involves a visit to the dentist and treatment involving changing the relationship of the upper jaw to the lower jaw and the joint that connects them. (temporomandibular joint). More information on that can be viewed in the Parkinson's Resource Organization newsletter.
PD is costly: In 1997, researchers estimated that the annual economic burden associated with Parkinson’s disease (PD) in the United States was $25 billion.
Parkinson's disease & Stem Cell Research? Stem cell research can provide breakthrough treatments and cures for diseases and injuries that affect millions of Americans with Parkinson’s Disease, diabetes, cancer, heart disease, cystic fibrosis, multiple sclerosis, sickle cell disease, HIV/AIDS, osteoporosis, ALS, autism, severe burns and spinal cord injury.
Fairness? The NIH is spending $8,739 research dollars on each patient death from PD in 2007 versus $225,656 on each patient death from AIDS. The NIH is spending $171 per PD patient in research versus $3,032 per AIDS patient. Jeffrey C. Martin, Chairman of the Board, Parkinson’s Action Network, stated, “While the NIH has a new emphasis on translational research under Director Zerhouni, the resources necessary to truly yield the payoff we are seeking have not yet been committed.”
Clinical Research Trials: As of 9/05/10 there are 4,473 listed for HIV, 4,746 for AIDS with only 738 for Parkinson's disease, Deaths from Parkinson's disease: 19,566; from HIV/AIDS: 14,110.
Parkinson's Disease & The FAIR Foundation: In every presentation given by The FAIR Foundation, Parkinson's Disease is highlighted in the powerful ABC/ADA John Stossel Video. It features another hero in the battle for more research funding in front of the Senate Appropriation's Committee: Joan Samuelson, J.D., who has persevered against PD to be President of the Parkinson’s Action Network and Michael Fox, Founder of the Michael J. Fox Foundation for Parkinson's Disease Research. Please take a few moments to view the video HERE (used with authorization--high speed connection required).
Parkinson's Disease and all other diseases except HIV/AIDS and cancer would receive larger research allocations under the FAIR Foundation's recommended policies.

Facts on Parkinson's Disease from Parkinson's Resource Organization, Parkinson's Disease Foundation, Parkinson's Action Network, National Parkinson Foundation, & Healthline.

You have helped us grow rapidly, but we need more members to change Congress and the NIH. Please encourage new membership by posting this in chat rooms, Blogs, internet support groups, and by forwarding it to your associates, friends and relatives with your recommendation that they join free HERE. With strength in numbers, we WILL achieve fair and equitable NIH distributions for Parkinson's disease as well as ALL other diseases.

The FAIR Foundation; E-mail fair@dc.rr.com FAIR is an apolitical 501 (c)(3) organization. You may donate to our cause--we are an all-volunteer organization--here.

FAIR Mission Statement: The FAIR Foundation is dedicated to fair and equitable distribution of research funds by the government for all diseases, including the 16 that kill a million more Americans than AIDS. A disease’s mortality rate shall be given emphasis in determining allocations and other secondary factors shall be utilized to insure diseases that cause great suffering but have low mortality rates will also receive significantly increased funding.