State Map to Donate Life Registry to become an organ donor. 1 organ donor can save 8 lives!

Exactly who is receiving HIV research dollars?
Are they all in the USA? You'll be surprised

Where is the $3.184 billion in HIV research being spent and who is receiving the exorbitant funding? Click on the hands reaching out for the cash.

 

2011 NIH funding for each
disease now available

The 2011 estimated funding by the NIH is available and it shows patients are receiving research funding as follows: Parkinson's disease $171 per patient, Alzheimer's $92, diabetes $42, breast cancer $4,238, cardiovascular disease $26, HIV/AIDS at $3,032 and the total funding for over 6,000 rare illnesses is only $467 million, down from $1.2 billion in 2006.

FAIR adds Links page--do you
want your organization included

We have added a page on which we are posting links to other organizations. If you would like a link to your organization added here, just let us know at our email address: fair@dc.rr.com.

FAIR Continues its dental plan for transplant patients as featured in ACP Newsletter

If you have passed all of your pre-transplant requirements except for dental due to financial hardship, contact us and we will attempt to find a dentist that will help you pro-bono. We have helped many patients in the past and may be able to assist you also. For a complete summary of our dental plan for transplant patients, click the smile and download the information if you are in need of help. This dental plan is made possible and was instituted with the American College of Prosthodontists (ACP). In a recent national ACP newsletter (The Messenger) they included a story on their dentists who have helped save lives in the FAIR/ACP dental outreach plan. 

FAIR Profiles States

What are the top ten causes of death for the citizens of Illinois and Indiana as reported by the Centers for Disease Control and Prevention (CDC)? Is HIV/AIDS one of them? If not, how do the top ten compare with HIV? For the top ten causes of death in these states and other interesting info, click on their map. For HIV/AIDS deaths in those and all other states, click here.

Your Disease's research dollars--where are they going?

Have you wondered where the money being spent on your disease is actually going--to what researcher in what country? Click here, find your illness, then click on the budgeted amount to get the full list of people researching your illness.
 

FAIR's Press Release: Immediate Action Needed to Reverse America's Organ-Donor Crisis

Every hour a person on the waiting list or one who was delisted due to becoming too sick to be transplanted dies. You can help give all in need the "Gift of Life" by simply copying this opinion editorial and sending it to media and President Obama. Click on the Please Help logo!

Waiting for a Liver Transplant?

Are you waiting for a liver transplant?  Which areas/hospitals are transplanting years sooner than others. To calculate your MELD score and find the region/state that is transplanting at the lowest MELD score, click the liver.

The HIV/AIDS Clinical Trials
Parade Continues

In May there were 1,742 HIV/AIDS Clinical Trials, in August, 1,865, in October 2,233, As of 12/20/10 there are 4,268 listed for HIV and 4,916 for AIDS. Find out how many for your disease by clicking here. For example, there are a total of only 766 for Parkinson's Disease, 859 for Alzheimer's Disease, 1139 for COPD, and 1089 for hepatitis C (many involving HIV & HCV).

Do you auction items on E-bay?

If you sell an item on E-bay and participate in their program to benefit non-profit organizations and you would like to include FAIR in your philanthropy, you can easily donate a percentage of your revenue received to FAIR--as little or large a percent as you wish to donate. To learn how, click on the E-bay logo and we thank you! To see an auction that is donating to FAIR, click here.

Focus Disease: Cystic Fibrosis (CF)

•  Cystic Fibrosis (CF) is a disease that mainly affects the respiratory system (airways and the lungs) and the digestive system (stomach, intestines, colon and other organs involved in the digestive process). CF causes thicker-than-normal mucus that can lead to obstructions in the respiratory and digestive systems. In the respiratory system, the abnormal mucus obstructs airways and also creates conditions that lead to repeated infections in the lungs. In the digestive system, the mucus can obstruct ducts in organs involved in digestion. CF can interfere with the liver, the pancreas as well as other organs that are part of the digestive process. This makes it difficult for persons with CF to effectively digest food and absorb nutrients.

•  Cystic Fibrosis and occurrence: CF occurs in approximately one of every 3,200 live Caucasian births (in one of every 3,900 live births of all Americans). About 1,000 new cases of CF are diagnosed each year. More than 10 million Americans are unknowing, symptomless carriers of the defective CF gene. An individual must inherit two defective CF genes -- one from each parent -- to have CF.

•  Cystic Fibrosis causes great suffering: People with CF have a variety of symptoms including: fatigue and exhaustion; very salty-tasting skin; persistent coughing, at times with thick, sticky mucus in the  lungs; wheezing or shortness of breath leading to extreme difficulty in breathing; an excessive appetite but poor weight gain.

• FAIR Profiles and Remembers a special lady....
  Rosemary Quigley was a highly respected and loved medical ethicist who wrote of living with cystic fibrosis and undergoing a double lung transplant. Read about this courageous woman and how she brought the much needed ingredient of "Hope" to others. Click here

• Cystic Fibrosis treatment: The treatment of CF depends upon the stage of the disease and the organs involved. Clearing mucus from the lungs is an important part of the daily CF treatment regimen. Chest physical therapy is a form of airway clearance done by vigorous clapping on the back and chest to dislodge the thick mucus from the lungs. Other types of treatments include antibiotics to treat lung infections, decongestants, bronchodilators (drugs that open airways congested with mucus) and anti-inflammatory drugs. Lung Transplants Increase Survival Of Cystic Fibrosis Patients By More Than Four Years.

• Cystic Fibrosis Care is available: The Cystic Fibrosis Foundation has 117 accredited care centers to help patients. To find one in your state, click here.

• Frequently asked questions about CF

• Cystic Fibrosis & Stem Cell Research? Stem cell research can provide breakthrough treatments and cures for diseases and injuries that affect millions of Americans with cystic fibrosis, Parkinson’s Disease, diabetes, cancer, heart disease, multiple sclerosis, sickle cell disease, HIV/AIDS, osteoporosis, ALS, autism, severe burns and spinal cord injury.

Facts on Cystic Fibrosis from the Cystic Fibrosis Foundation, Journal of the American Medical Association, National Organization for Rare Diseases (NORD), American Thoracic Society as reported in "Science Daily" and from the California Stem Cell and Research Cures Initiative Organization.

You have helped us grow rapidly, but we need more members to change Congress and the NIH. Please encourage new membership by posting this in chat rooms, Blogs, internet support groups, and by forwarding it to your associates, friends and relatives with your recommendation that they join HERE. With strength in numbers, we WILL achieve fair and equitable NIH distributions for Cystic Fibrosis as well as ALL other diseases. 

The FAIR Foundation; E-mail fair@dc.rr.com FAIR is an apolitical 501 (c)(3) organization. You may donate to our cause--we are an all-volunteer organization--here.

FAIR Mission Statement: The FAIR Foundation is dedicated to fair and equitable distribution of research funds by the government for all diseases, including the 16 that kill a million more Americans than AIDS. A disease’s mortality rate shall be given emphasis in determining allocations and other secondary factors shall be utilized to insure diseases that cause great suffering but have low mortality rates will also receive significantly increased funding.