Patient Education & Support
Liver & Kidney Disease and Transplant Support Group

The Coachella Valley Support Group, a program of the FAIR Foundation, provides emotional and educational support, referral information and strong peer support. 

Leading doctors and other healthcare professionals in the treatment of liver and kidney disease are regularly invited guest speakers.


Advocacy

FAIR supports the Acuity Circle Model  for the allocation of livers to candidates within 150, 250, or 500 nautical miles (nm) of donor hospitals before offering them nationally to allow for efficient placement of donor organs and to avoid organ wastage.  

FAIR Foundation supports the “Living Donor Protection Act of 2017”

Living Donor Protection Act of 2017 (HR 1270) Resolution as introduced by The American Society of Transplant Surgeons to AMERICAN MEDICAL ASSOCIATION HOUSE OF DELEGATES 

FAIR Foundation opposes the Dialysis PATIENTS Demonstration Act of 2017

The FAIR Foundation Board of Directors has carefully examined the Dialysis PATIENTS Demonstration Act of 2017 (S. 2065) (HR 4143) (“the PATIENTS Act”), and strongly opposes its adoption.  Read complete discussion.

Improving Medicare Patients’ Access to Kidney Transplantation Resolution as introduced by The American Society of Transplant Surgeons to AMERICAN MEDICAL ASSOCIATION HOUSE OF DELEGATES


TAKE ACTION NOW!

Email Your Legislators About the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2019  (H.R. 5534)

The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2019 would extend Medicare coverage of immunosuppressive drugs for kidney transplant recipients, which is currently limited to just 36 months. 

Medicare covers dialysis for most Americans, regardless of age, with no time limit. However, if an individual is under the age of 65 or not Medicare-disabled (receiving Social Security disability income), his or her coverage eligibility for immunosuppressive medications ends 36 months after receiving a transplant.

Many recipients are unable to afford their medications after the 36-month limit. This often leads to the unnecessary failure of the transplanted kidney, which can lead to another transplant or dialysis.

This bill will eliminate the 36-month time limit and provide continued Medicare coverage for these lifesaving immunosuppressive medications.

This lifetime coverage also confers a benefit to children who receive renal transplant who outgrow their state specific plan.

Please contact your legislators about this important issue!


Upcoming Events

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Education

Physicians specializing in the treatment of kidney/liver disease, transplantation surgeons, dieticians and social service experts volunteer their time to help you understand and manage your disease in an informal, non clinical setting during our monthly support group meetings. 

FAIR Foundation Mission

Drive reforms through educational outreach and improving legislation in order to promote policies and activities that increase the availability, access and health equity of solid organ transplantation in the United States.

All information is posted without profit or payment for research and is for educational purposes only, in accordance with Title 17 U.S.C. section 107. FAIR Foundation is a federal 501(c)(3) tax-exempt organization, federal tax ID# 42-158636.

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